On January 21st, 8pm in Australia, 9.30am in the UK, mid afternoon in the USA, I will be holding a Q & A on Twitter for its release. Yes, it will be out that day… I think I am as nervous as I am excited! Jessica Kingsley Publishers (JKP), who are publishing my book will be online as well.…
The new year has arrived, and I’m still wondering how on earth I arrived at the year 2000! The older we get, the quicker the years seems to go, but of course as I’ve speculated before, that is relative to our age as a year at my age, is more than 1/50th of my age, where…
Yes, I am suffering… but only some of the time not every moment of every day And, importantly… not always from dementia more often from the language of dementia The symptoms of dementia do not consume me one hundred percent of the time Only some moments of some days and definitely not all days So why then must others…
This is a simple, succinct quote on who’s got the problem in caring for or communicating with people with dementia, and if this point was taken seriously, and considered fully in the dementia sector, 90% of the so-called ‘challenging behaviours’ we are so negatively and glibly labelled with would probably never surface… If you can’t understand…
This particular Article of the UN CRPD sounds so simple, and yet, in reality, it is not happening for many people with any form of disAbilities, but even less so for people with dementia as we have not even been recognised as having the same rights (yet!!). In my own experience, I was not afforded,…
If giving the world the best I have, means I get kicked, loved, or ignored, it is still my choice to give it my best, and to speak up for all people with dementia, for our human rights, our disAbility rights, and for inclusion, no discrimination, reducing stigma and isolation, and for respect, including respectful…
It seems my focus on our basic human rights, and disAbility rights, is keeping me focussed on the UN CRPD this week, and I suspect this is where I needed to be about six years ago when I first started speaking out as an advocate… better late than never! 🙂 Seeing the person, not the dementia or…
finding our way wanting the same our differences visible or invisible not to be seen as disabilities but as Abilities we are still the same even though we may look different or act differently to you our hearts are in tact we still have desires and a need to be independent to learn from each…
Following on from yesterday, the International Day of Persons with disAbilities, and the theme of human rights and disAbility rights, I am today highlighting another Article of the United Nations Convention of the Rights of Persons with DisAbilities (CRPD). I have been advocating for almost as long as I have had a dementia, that we have…
Theme for International Day of Persons with disAbilities 2015 Inclusion matters: access and empowerment for people of all abilities Today it is the International Day of Persons with disAbilities, and one of the sub themes this year is people with invisible disAbilities, which therefore includes people with dementia. Being recognised last week, in the National disAbility…
On Thursday December 3rd later this week, we are celebrating the International Day of Persons with Disabilities, and to have won a National disAbility Award last week is more than timely for people with dementia. This particular award means so much more than recognising what I do, and that is also not the reason I work so…
What the hell happened to my brain Diagnosed with dementia when I was much too young My children still at school A deadly, terminal disease effecting Memory, thinking, perception, judgment, language and speech But worse than that, effecting my Life, family, friendships, my sense of self, my identity And a bucket load of guilt Truckloads…
Last night in Canberra, I was the joint recipient of a 2015 National Disability Award as Emerging Leader in Disability Awareness. All winners were asked to give an impromptu speech, and although I managed to, I was very emotional, and found it quite difficult to say all the things I should have said! I forgot…
I‘ve been advocating for people with dementia to be included at every single conversation about them for many years now. For the last year or so, have also been actively asking people without dementia, to take action as well. For example, I have been asking that when they get invited to be key-note speakers, or receive invitations…
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