What a day. It started with a webinar I was involved in, needing me to get up at 4am. After that, and two online peer-to-peer support groups, I was interviewed again by Spence Denny (2nd time this week), to comment on the Royal Commission into Aged Care Quality and Safety. I spoke about Human Rights being…
Over the last few years, the concept of Dementia Villages, Memory Cafes, Dementia specific shopping lanes, etc. has been growing, and worse, the villages are currently being lauded as ‘best practice’, in spite of there being NO evidence for them. Just like the Dementia Friendly Community or Dementia Friends initiatives, they were developed by people…
The life of an advocate can definitely be rewarding, but it can also be very challenging. Along my own roller coaster ride of living with dementia and public advocacy, I have met a lot of wonderful people, as well as felt a lot of frustration. I am though, very happy not to be walking alone…
An an article published on October 2, 2018, Behavioural and psychological symptoms of dementia: GPs’ perspective on management highlighted to me on Twitter via Dubhgas Taylor, I want to highlight one of the problems we are facing. It reports on a ‘mixed-methods systematic review by Jennings and colleagues aimed to develop a better understanding of general practitioners’…
It is the final day of World Alzhimers Month 2018, and I decided to end the month by saying I am tired! Go figure… I helped orchestrate 30 blogs on the DAI website, as part of their campaign for this month, #Hello blog/vlog series. Please follow the link and read them, if for no other…
I really love this quote, and felt it quite relevant to this blog series about the need to #BanBPSD. Fronteirs in Neurology state: “Behavioral and psychological symptoms of dementia (BPSD), also known as neuropsychiatric symptoms, represent a heterogeneous group of non-cognitive symptoms and behaviors occurring in subjects with dementia.” Thankfully, at least in my opinion, there…
World Awareness Month 2018 is well underway and #DAI continues to run their daily series of #Hello my name is blogs to raise awareness of dementia and to share our members stories However, this month, I am maintaining focus on my #BanBPSD blog series. Hence, I have put together the following list! Whatever we do, whoever…
This may seem a radical statement, but I sincerely believe it. It is time everyone, especially the health care professionals and educators still so heavily invested in BPSD think more deeply about it. We must find new ways to teach dementia care that better serves the client – to live more positively, and which is free of…
Rethinking Dementia Care by Banning BPSD For World Alzheimer’s Month this year, #WAM2018, I will be focusing on why I, and a growing number of others believe we need to Ban BPSD (the Behavioural and Psychological Symptoms of Dementia). Six people, myself included wrote a Letter to the Editor of the Australian Journal of Dementia…
Urgent Attention: Gabriella Rogers and 9News This letter is in response to the entitled “New Drug to Treat Behavioural Issues in Dementia Patients”, publicised on Aug.18th 2018 at 6pm. “This report misrepresents both the facts and the real-world experiences of people living with dementia. The report positions all behaviour, moods and reactions within the frame of a dementia diagnosis…
Perhaps it is a great idea, but surely, labelling where we live, shop or eat and have coffee by our disease or condition, is simply another form of keeping the myths alive, as well as ensuring a continued sense of ‘otherness’. It is definitely another form of segregation. And yet, the emergence of Dementia Villages, or…
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