This new podcast series is for honest discussions on issues affecting people with dementia, people with other disabilities, and any other topic where propoganda keeps promising change, but continues to fail us…
A colleague and friend of mine wrote this about the drug, lecanemab (Leqembi), a drug I have not been supportive of either. I’m tired of pharmaceutical companies and many members of the medical community focusing on drugs and a potential cure, instead of care. Risk reduction has rightly become a major focus, which of course…
The discourse of suffering has long been a topic of lived/living experience dementia advocates and activists. Most people who’ve followed me here will know I have been very vocal about it, and how it is harmful to people living with a dementia diagnosis at any age. I presented on the topic on the power of…
Here are the links to three podcasts hosted by ‘With All Due Respect‘ I was interviewed for last year, which I probably forgot to share here. My beliefs about the dementia-friendly iniatives is that they are unfriendly to people with dementia, and wporse, are a waste of time and money; money that should be used…
Yes, just as it is usually non-Indigenous people who are responsible for racism, people without dementia, and even some people with dementia, are partly responsible for stigma, discrimination, the continuance of rights violations, and the systemic injustices and exclusion many are still experiencing. The dementia friendly initiatives have done nothing to improve things either, other…
As a person living with a diagnosis of a rare young onset dementia and a retired (?!) activist engaged repeatedly in research, policy, and advocacy spaces, I argue that research which fails to achieve its stated aims is not simply ineffective—it constitutes a breach of disability rights as articulated in the United Nations Convention on…
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