Try as I might, I am currently really struggling to convince a group of global researchers on the importance of adding two simple things to a list of possible interventions following a diagnosis of dementia. It has got to the point, I feel discriminated and stigmatised by them, as most in the group generally seem…
In my blog The impact of Betrayal Trauma, published quite recently (although it says it was posted in January), it seems to have opened up a few wounds and hearts of many others I’ve been talking to. It is especially sad to know this is such a familiar and common experience, and I go back to…
I’m sure this seems a bit unusual, but today, I want to acknowledge and recognise three women who have positively impacted my life, as well as two men! After all, without women and men, no-one would exist… We are on this planet together, after all, and although there are many women and men who have…
The quest for a more positive public narrative about those of us diagnosed with dementia, and on attitudes about the way a person and their family might choose (and be able) to live with dementia continues. Currently, living too positively with dementia, being remotely functional, and even having fun with it too often gets those…
Image source: Kate Swaffer Recently, there has been an online discussion somewhere on Facebook (I can’t find it to refer to it) about what needs to go into what in Australia, we call “Advance Care Directives” (updated from Advanced since being indirectly corrected via twitter). I have had a legal will, and both a legal…
The short Vimeo I am posting below today was made by a friend and colleague in Scotland, which I found to be incredibly profound. For me, it spoke mostly about truth. But it also speaks about lies and deception, and arrogance and the lack of scrutiny. As I have become what others often tell me…
The following article which is about a 5 year research project is truly terrifying, and only confirms my committment towards the need to Rethink Dementia and ban BPSD. It is thanks to Tina Minkowitz who is an attorney and psychiatric survivor in New York, and founded the Center for the Human Rights of Users and Survivors of Psychiatry, that…
The last few months, I have noticed a lot of changes in my physical and cognitive health, and have watched on as so many others are struggling with worsening or new health issues, or facing difficult personal challenges. It is worrying, and on some days, it would be so easy to give up not only…
Tracey Maxfield wrote an excellent short post some time ago now about Betrayal Trauma on her LinkedIn page, which I then shared in a short post on Facebook. It was too important and relevant to so many of us living with (and without) dementia not to start a blog about it and quote her here, It…
