Lessons on writing and finding your tribe

Jeff Goins writes a great blog, and I often find what he says about writing and blogging, and finding your voice and tribe is incredibly valuable. With his permission, my blog today is the three lessons he has learnt from having a tribe, which does not appear on his blog but arrived in his e-newsletter recently. What I…

Describing how dementia ‘feels’

Earlier this year Kay Bransford and I started a conversation blog called The Dementia Dialogue, and I recently answered this question, Could you describe how dementia “feels” to you? The original question was this; “Could you describe how dementia “feels” to you? I wonder if it’s simple loss of a memory, or is there some type…

Drowning, paddling harder and staying afloat

Many days it feels like I am drowning from the symptoms of dementia, and last night my husband and I were talking about the changes that are taking place again, and the fear we both feel when I might not be able to keep myself afloat. It is not the most comfortable emotional journey, constantly feeling like…

The liberative power of blogging

What I write is merely what I am thinking at a given moment, my opinion or thought or feeling about something at a particular time. It is fluid, and may change, even a moment or an hour later. You may agree with it, or disagree. You may care, or not care, but if you read…

Fear, shadowing and dementia.

Fear is a constant companion of most people living with a diagnosis of dementia. I’ve been thinking a lot lately about fear and dementia, and its impact when a person is diagnosed with dementia, or living with the symptoms of dementia. In the article Fear drives shadowing of Alzheimer’s caregivers written by Angela Lunde, it…

Blogs as ‘thermometers of wellness’?

Maybe that is what my blog has become for me, as I’m still struggling with having not properly published my blog from a week ago! I do seem to gauge, they same way as we checked the rain every day on the farm, how well I am doing. I know my husband and some of…

The lights are on…

but nobody is home! I’ve been trying all morning to think of something to write about. I’ve been searching through my numerous drafts to complete one of them to post today, and still no luck. So I thought I’d try the NaNoWriMo rambling style of writing again and just see what comes out; this is…

Jeff Goins on his critics

Jeff Goins wrote in his newsletter recently, “The problem with “too much” is it’s not enough. Not for some people. Too much tweeting, too much talking, too much selling — these are all subjective, determined by someone else’s preference and worldview. What feels like an overwhelming series of broadcasts to one person is near silence…

Reflections, Memories and Narrative Therapy

The following is a reflection I wrote after my first piece of writing done for a university writing course, writing about a place, and I chose to write about the new place I was in, living with dementia, which ended up being published: “I have chosen my newly diagnosed dementia as a place to write…

Diaries and travel logs

Since starting this blog and have started writing daily, it seems I simply cannot stop, and my personal writing goals are growing, and my days are mostly spent with my trust little pc. The words that spring forth are not often academic or even very intellectual, but I try for honesty and openness. Occasionally on…

Socrates

                      I’m with Socrates on this, as it seems to me that real knowledge is about knowing that you don’t really know anything. I do a lot of thinking about my thinking, and am constantly delving into the recesses of my mind to try to…

Life inside my heart

This blog is a rambling discussion of life inside my heart. There are days when writing this blog has become a burden, but I continue to push myself as I firmly believe it is the right thing to do and that it is one of my ‘positive interventions for dementia’ that is helping. Yesterday I just could…

Brain blackouts!

Another day of wondering what the hell happened to my brain! It is also a struggle today to be bothered writing a blog, or even getting out of bed. Sometimes I jump out of bed early as that is the only way to stay motivated to keep on with fighting against dementia, even though it would…

Pressure to perform

Today, I was feeling brain drained and not up to writing a blog, until I found the following responses sent to me by someone I have met who works in aged and dementia care. I have kept up with your ordeals of late and also read Jane Sherwin’s response in congratulating you for speaking out…

Thoughts on blogging

After re-reading and spending time thinking about many of the comments made in response to many of my blogs, I have been thinking a lot about blogging, and what the point of it is. It is a way to express, to create, to educate, to inform, and to heal. It is free. It is up to…