Well, today is actually the day! My book on living beyond dementia is officially released, although, as yet I have not even seen a copy; it is only a very few lucky people in the UK have actually seen it. So, when (if) I get a copy, I’ll take a photo and add it here!
It’s been a long hard road for all sorts of reasons, but finally, I have found this to be true; everything does come to those who wait (long enough)!
Join me tonight for a twitter chat – ask your questions about how I live beyond dementia, and be in the running for a free book. If you arrant on twitter, send them to me here, and I will make sure JKP tweet them, and I answer them!
This Twitter event is being hosted by @JKPDementia and Kate’s Twitter name is @KateSwaffer and the hashtag is #LivingBeyondDementia. The LIVE Q&A to celebrate the launch of @KateSwaffer‘s new book on #LivingBeyondDementia is January 21st at 9.30AM GMT/8PM ACDT
The time for Australians for this Twitter chat on Thursday 21st January is as follows: SA 8pm – NSW/ACT/VIC/TAS 8:30pm – Qld 7:30pm – WA 5:30PM – NT – 7PM. In the UK it is 9.30 AM and in the USA (sadly) it will be in the middle of the night (e.g. Washington DC it will be 4:30AM)!
This book, titled “What the Hell Happened to my Brain?: Living beyond dementia” and is available in Australian in some shops (e.g. Booktopia) and from Amazon.com.au, The Book Depository and Amazon.com. If it is not available in your local bookshop ask then to get it in for you, as they will.
I have to say though, it is a strange feeling, having worked so hard to write a book, having a publisher contact me, and then not seeing it before anyone else other than the publishers. In many ways like a real let down, and very disappointing, but I am working hard to not let that take away from what should be excitement and feeling proud.
It is exciting, and I feel proud of my hard work and contribution; but I also feel nervous, as unlike this blog, I cannot suddenly decide to make it private, where no-one can see what I have written! I feel nervous there will be errors, or that I will have upset some, as some things I have written talk from the other side of the story, and may upset professionals or family care partners. Too often, I feel, there has been kid gloves on about some of the issues I have confronted and written about, and so, it was my ‘gut feeling’ that I had no option but to write about them as I have experienced things.
Never, not even once, if I have offended or annoyed someone (and I do say in the book, it may annoy some), have I meant to. At all times, I have simply written from my heart, and tried to use logical explanations, analogies and examples to explain things. Sometimes this will have worked, sometimes not. That’s ok. Some will like it, some will hate it, some won’t have an opinion, and some won’t ever read it. That’s ok too.
I love you all, and respect and honour those of you who care for a person with dementia, just as I love and respect those of you who are faced with the diagnosis. It is one very hard road for us all, and we need desperately to understand each other. We must wear each other shoes, in order to more fully understand how hard it is – for each other! And if you live alone, then perhaps, whilst you may face some challenges those of us with a partner don’t ever find out about, you may just be better off in a number of other ways?