Following yesterdays SA update, here is a brief national update from ProBono Australia who reported on the NDIS late last week, written by Rachel McFadden (29 July 2017); NDIS Having a Life Changing Impact Despite First Year ‘Teething Problems’
On the eve of the first anniversary of the Australia-wide rollout of the National Disability Insurance Scheme participants, providers and advocates say despite the teething problems, the NDIS is having a “life changing impact” on people with disabilities…
A spokesperson for Multiple Sclerosis Limited (MS) said that while the NDIS was “a significant transformation” of the disability sector the scheme’s administration had been “inconsistent and challenging”. “The experience of many people living with MS has not been positive nor adequate,” the spokesperson said.
“Issues include: a lack of understanding of disability within the LAC workforce; absence of specific understanding of MS or other progressive neurological conditions; Local Area Coordinator’s lacking experience in conducting planning conversations and reports of clients being hurried to complete the assessment or coerced into accepting phone rather than a face to face meetings.”
It will be very very interesting to receive feedback from people with younger onset dementia who are expected to switch over to the NDIS from the Aged Care Sector early next year.
Most of us are very nervous, as not even the aged care sector is adequately educated in dementia, and to believe NDIS staff will be, I suspect, might simply be too aspirational.
People with dementia have a human right to disability assessment and support, as well as rehabilitation at the time of diagnosis, so in reality, this is the sector that may be better prepared to support us to live, not only die from dementia.
If we think of rehabilitation in terms of support to live independently (for those of us with dementia, for as long as is humanly possible), rather than a cure or reversal of our dementia, then it is easier to understand why it is so important. If you go to the link in this paragraph, do think about reading Norman Doidge’s books on neuroplasticy, the first about how we can rewire our brains, and the second about how we can heal them.
Hopefully, the NDIS will support a post diagnostic pathway that does not support Prescribed Disengagement® as that is the worst thing that can happen to us, or anyone with any chronic or terminal illness or condition. We probably can all remember, there was once a time we locked people with physical and intellectual disabilities away too, so we must stop locking away people with dementia too.
Read the full story here on ProBono Australia, but the infographic is a good snapshot of the first year roll out of the NDIS after three years of trials.