It is Day 3 of Dementia Awareness Month here, #DAM2020 and my blog is a recording of a presentation given by Assoc/Professor Lee-Fay Low on 15 August 2019. Lee-Fay is a friend and colleague helping to reframe dementia.
I only saw the recording recently, and it’s given me much to think about, and to do! I’m delighted to have inspired Lee-Fay to become interested in the value of rehabilitation for people with dementia, and to research and write about it! And to question BPSD, even if she may not think we should ban it (yet)…
‘Eating an elephant’ is as easy as one small mouthful at a time!Kate Swaffer, 1985
One comment she makes, which I have contacted her to correct for the next time she speaks about it, is that I need to clarify what happened to me, when I was dished out the Prescribed Disengagement®. Lee-Fay says in the video that my doctors are the ones who prescribed disengagement – when the truth is it was the facilitators of the Living with Memory Loss course Peter and I attended. They are who advised me to get ‘give up work, give up study, get my end of life affairs in order, and get acquainted with aged care’. They also told Peter he would have to give up work soon to look after me. Everyone I saw after that also then re-confirmed what they said.
Whilst Dr Casse (Neurologist) and Dr Field (Neuropsychologist) said I had about 10 years to live, and there was no treatment avalable for me, their focus was on diagnosing, and not on post diagnostic support.
Rehabilitation and Dementia – evidence and aspirations
Hosted by The Macquarie University Community
Footnote to Lee-Fay: One of these days, I will publish my alternative to BPSD, apart from banning it!
About the presentation:
People with dementia receive almost no rehabilitation for their dementia and are less likely to receive rehabilitation for other conditions. People with dementia have been demanding rehabilitation arguing that they have a human right to treatment.
This talk provides an overview of the growing body of evidence for a range of rehabilitative therapies and their outcomes for people with dementia. These include exercise, brain training, occupational therapy, and psychological therapies.
Opportunities for implementation of rehabilitation for people with dementia within the Australian health and aged care systems will be discussed, as will barriers to implementation including stigma, workforce and costs.