Hello there! It has been quite a while since I contributed to my own blog and website, and I feel like I’ve missed out on some great conversations. The one thing I love about feedback is that we get to hear about different views on topics, and even if we don’t agree with each other, we all have a lot in common.
Last week I presented at a webinar on the topic “Reframing Dementia as a disAbility“, hosted by Alzheimer’s London in Canada, and the image I’ve used here today is from one of the slides.
The night before, I had been having a discussion with my B.U.B. about being ok (or not). We often ask each other if we are ok, and usually say something like, ‘yes, all things considered.’ However, the reality is that we are not really ok at all, and both would like our pre-dementia lives back!
We are making the best of a truly life changing, sometimes very difficult and sad terminal diagnosis, wearing our ‘being as brave, optimistic and resilient as we possibly can be’ hats on! He wrote to me he day after, saying
“What has happened to you and is happening every day is not Ok, and I have pretended for a long time that we were Ok.”Peter Watt 2021
We are mostly ok, except that we live with a dark cloud every single second of every day, and although the denial bubble is useful, it is not always easy to retreat into.
Dementia stole many of my (our) dreams.Kate Swaffer 2021
What we really need now is for well-meaning others to stop taking what is left of our dreams, and instead support us to continue living as positively as possible, following our own dreams.
Ps. You are invited to the Dementia Alliance International 7th birthday celebration Cafe this week!