I’m re-blogging a post from a blog I read called Memory Issues, written by a loving and enabling husband Paul, who is the care partner for his wife Maureen. I really respect his willingness and creativity, to allow his wife to be as enabled to live her life, as well as possible. Often, what I see…
It is indeed an honour to be listed as a State Finalist Australian of the Year 2016, and yet I feel strangely uncomfortable being named amongst this formidable group of Australians, or even being a finalist at all. My work as an advocate for people with dementia, which in fact is now more than 47 million…
There is just 9 days left to submit your abstracts for Alzheimer’s Disease International‘s leading global dementia conference. Have you got a bright idea you’d like to share, or some research you are involved in that would be interesting? Join the world’s leading dementia speakers and advocates and be a part of ADI’s next conference in Budapest in April…
This may not be such a positive blog today! I have a private blog called ‘What the hell is happening to my brain?’, which many of you know is also the first part of the title of my book soon to be released, and I may have even posted at least one blog with that title before today.…
My blog today consists of some quotes from a blog I read, about the rights of people with disAbilities, the World Health Organisation determination on Discrimination, and my thoughts on all of this in relation to people living with dementia. People with dementia are currently advocating for inclusion and recognition under the United Nations Convention of the Rights…
Very humbled and proud to be announced at the International Dementia Awards in Birmingham UK, as the Dementia Leader of the Year at the UK Dementia Congress 2015 conference. There have been loads of tweeps out there congratulating me, which is also how I found out; I have only posted three of them. Thank you to everyone for…
This wee rescue pup is my grand-dog, and I prefer to call her Daisy, simply because she is a girl! But, as she is now a famous actress with a cooking show devoted to her, I guess I’ll have to tow the line, and at least refer to her as Lady Dave… Yes, pup, she is…
After my blog yesterday, talking about safety vs autonomy, and my feelings about the traditional styles of residential care, I felt it important to also say, there are many in the sector wanting to improve things for people with dementia and their families. There are, as highlighted in some comments, many family care partners who…
I’ve been asked to write from a consumer’s perspective about whether I think the views of people with dementia could influence the design of residential aged care, and if there is a difference between the view of people with dementia and their families about what a care home should be like. It has been a difficult task, and is for…
For those of you who have not yet subscribed to the Dementia Alliance International weekly blog, I’d seriously suggest you do. This week, we had the honour and great pleasure of hearing from Professor Steven Sabat. To hear it, please follow this link to our blog with the recording of it on the website there. For those of…
Yesterday, it was announced in the media I am one of four SA finalists in the Australian Of The Year Awards. This was for me, incredibly humbling, and also incredible to be recognised for my advocacy and activism for people with dementia, both here in Australia and globally. I don’t do this for money, and am almost…
A beautiful Obituary for my friend Michael Horvich’s partner Gregory Maire 1948-2015… I especially love it as it clearly describes how Gregory “lived very well with Alzheimer’s”. I know it is not always easy for others, or even some people diagnosed with dementia to believe this is even remotely possible… but there are many who not only…
The saying “Treat others as you wish to be treated” is often bantered around in aged and dementia care, and society in general, and most think it is a lofty goal. In reality, it is the exact opposite of Person Centred Care. This old saying, which many suggest stems from the 10 commandments, is in reality,…
ADI have a charter “I can live well with dementia’ – but still, no-one is telling us how to achieve it, or even that it is possible. For this International Charter to have any traction, people with dementia believe everyone, include their work. I’m also unsure this phrase is helpful, as living beyond dementia seems…
I follow and read Brain Pickings regularly, and almost find my own wisdom, curiosity and heart have been moved in some way. It is worth signing up to if you have not already. The article below I found especially relevant to me today… Poet Jane Kenyon’s Advice on Writing: Some of the Wisest Words to…
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