finding our way wanting the same our differences visible or invisible not to be seen as disabilities but as Abilities we are still the same even though we may look different or act differently to you our hearts are in tact we still have desires and a need to be independent to learn from each…
Following on from yesterday, the International Day of Persons with disAbilities, and the theme of human rights and disAbility rights, I am today highlighting another Article of the United Nations Convention of the Rights of Persons with DisAbilities (CRPD). I have been advocating for almost as long as I have had a dementia, that we have…
Theme for International Day of Persons with disAbilities 2015 Inclusion matters: access and empowerment for people of all abilities Today it is the International Day of Persons with disAbilities, and one of the sub themes this year is people with invisible disAbilities, which therefore includes people with dementia. Being recognised last week, in the National disAbility…
This week, particularly as tomorrow, Thursday December 3, 2015 it is the International Day of People with Disabilities, I am focusing on the United Nations Convention of the Rights of Persons with DisAbilities (UN CRPD), and today, in particular on Article 26. This is especially relevant to people with dementia, as we have the same right as…
This coming Thursday, December 3, 2015 it is the International Day of People with Disabilities, and so this week I am focusing on the United Nations Convention of the Rights of persons with DisAbilities (UN CRPD). This is an infographic of the Convention.
On Thursday December 3rd later this week, we are celebrating the International Day of Persons with Disabilities, and to have won a National disAbility Award last week is more than timely for people with dementia. This particular award means so much more than recognising what I do, and that is also not the reason I work so…
What the hell happened to my brain Diagnosed with dementia when I was much too young My children still at school A deadly, terminal disease effecting Memory, thinking, perception, judgment, language and speech But worse than that, effecting my Life, family, friendships, my sense of self, my identity And a bucket load of guilt Truckloads…
Last night in Canberra, I was the joint recipient of a 2015 National Disability Award as Emerging Leader in Disability Awareness. All winners were asked to give an impromptu speech, and although I managed to, I was very emotional, and found it quite difficult to say all the things I should have said! I forgot…
I‘ve been advocating for people with dementia to be included at every single conversation about them for many years now. For the last year or so, have also been actively asking people without dementia, to take action as well. For example, I have been asking that when they get invited to be key-note speakers, or receive invitations…
Honesty can be painful, especially when someone else is telling you something you either don’t know about yourself, or haven’t been able to see or accept about yourself, or perhaps that you don’t like about yourself. Looking in the mirror is for many, the hardest lesson of all; it definitely was for me! Personal growth is…
As co-chair of the Alzheimer’s Australia Consumer’s Dementia Research network, I presented at an Annual Meeting of the Cognitive Decline Partnership Centre (CDPC) this week on why it is important to include consumers in research, in particular people with dementia, as to date, most of the research has been done with care partners or the families…
This is an interesting thought, all the more so when I think about it for people with dementia and memory loss. Often, the things I do remember now that my changing memory or ability to recall information is challenged, are sometimes those things someone has done that I have felt upset by. Men often tell…
There were more than 8000 nominees in Australia for the Australian Of The Year 2016 Awards, and I feel deeply honoured, humbled, proud and delighted to be a part of this amazing group of winners and sixteen finalists. Representing people with dementia and those who support us is my main goal in life these days, in…
The support and of empowering of new leaders from within the global group of people living with a dementia has been one of my biggest goals or aims. It can, at times, also be one of my greatest frustrations, as it is not easy, and the system does not support us to live after diagnosis,…
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