Feeling disengaged…

A long week behind me Filled with mixed emotions Unexpected news A girlfriend with late stage cancer Then an incredible high of Meeting Roly Sussex, and Sharing a program in Brisbane With the wonderful Mick Carmody More funerals Then the  news of Margot’s death Very little blogging Even less DAI Book edits very overdue, A PhD proposal to…

Hiraeth and dementia

This was brought recently to my attention via social media, either Facebook or Twitter, although I can’t remember which one. I had not heard of the word, or did not remember it, which is not the issue here, but the meaning of the word has been playing with my heart-strings ever since. Initially it brought…

Love and letting go

As we sit and watch The one we love in the last stages of dying The hardest thing to say is “It is ok to let go” Let go and move on Find your freedom in the next world I will be here You will be there But you will never be forgotten Take your last breath…

Sit with me a while longer, by Michael A Horvich (2013)

Some time ago, I became friends online with Michael Horvich, and this poem not only moved me to tears, it helped me see the role of the family care partner differently, as if somehow it had softened my edges. I have been reading his poems again today, after learning the news of his partner Gregory’s imminent…

More on dementia and love

On Day 7 of Dementia Awareness Month this year, I wrote a blog called  Dementia and love, and there was a lot of feedback on it. One reader, who is a woman in Nigeria doing amazing things for people with dementia there, made this wonderful suggestion in her comments to the blog yesterday, which I re-shared on Facebook…