Long term care (LTC), is one term used to describe congregate living style settings including nursing homes and residential aged care institutions; most countries have their preferred term, as do academic journals. As a humanitarian and campaigner for civil rights and social justice, I’m becoming increasingly aware, and more educated on why these locked assisted…
The value of spaced repetition, which wikipedia says is “an evidence-based learning technique that is usually performed with flashcards” is perhaps why I actively repeat myself a lot. Perhaps my blog and the BanBPSD posts can be considered flashcards! Evidence suggests that after about six repititions, knowledge starts to become embedded. It feels like the right…
Todays’ blogpost begins with a petition I have signed, and which I’d encourge you to read, sign and share. Please. People with dementia should not be harmed by drugs that are fast tracked for approved, after accelerated drug trials, and which are known to be unsafe. People with dementia are not lab rats or mice.…
A colleague and friend Tina Minkowitz* works towards the rights of survivors of psychiatric abuse, and runs a course for activists and allies on the Convention on the Rights of Persons with Disabilities from a Survivor of Psychiatry Perspective. Her article on disability and incarceration is worth a read, even if you don’t have time…
Anyone who has followed me here for a while will know that in 2008, following a diagnosis made by my neurologist of a young onset dementia, I was advised to prepare to die, via aged care respite, which I ultimately trademarked as, Prescribed Disengagement. I was not supported to live well, or positively at all,…
The Chief Executive Officer at Women’s Community Shelters, Annabelle Daniel OAM, wrote an interesting post on LinkedIn recently, which began with Albert Einstein’s quote: ‘The definition of insanity is doing the same thing over and over and expecting different results.’ With the greatest of respect and with very much love for the fierce and wonderful…
I’m unflinchingly determined to continue to expose what I believe to be human rights violations in particular against people living with dementia, of any age, and of our families. That someone else may not see something I beleive to be a violation, or that I am accused of being wrong, or of blaming people for…
On Ageism Awareness Day 2022, I have pledged with Every Age Counts and also here: I STAND FOR A WORLD WITHOUT AGEISM To promote awareness of violence, abuse and neglect in residential aged care in Australia (and globally, I also wish to share a blog posted this week on the Dementia Justice website, on the…
The summary below and a link to the full article titled “What Happens in the Brain When We Imagine the future” highlights to me, the impact of lost hope, after being Prescribed Disengagement when first diagnosed with dementia. Many years ago, I trademarked that term, after advice it would be plagiarised if I didn’t! Sadly,…
It has been many years since I trademarked my term, Prescribed Disengagement®, yet, there are still many people without dementia who continue with the 20th Century view and management of dementia. My medical specialist (a registered, experienced neurologist specialising in dementia and migraines) advised me after the initial diagnosis that there was “no treatment for…
It remains a high priority of mine, hence I have been campaigning for the deinstitutionalisation and de-segregation of people with any type of dementia of any age, and in fact, anyone of any age living in residential care for many years. This includes ‘memory units’ and ‘dementia villages’. Although two of the following Transforming Communities…
According to Dan Evons the quote, “First they ignore you, then they laugh at you, then they fight you, then you win” is regularly misattributed to Mahatma Gandhi. Evon’s article on Snopes clncludes that it is most likely a combination of Klein’s 1914 speech combined with an attempt to summarize Gandhi’s nonviolent doctrine and philosophy. (Dan Evon,1 March 2016). I…
Thank you Brené Brown, for this timely reminder that it’s not just ok to stand up for what we believe in, to say the unsaid, it’s worth doing even if we are alone. It is sometimes lonely daring to bring light to stuff that’s been pushed into or kept in the shadows, especially when the…
It is September, which in the world of dementia advocacy, is referred to as World Alzheimer’s Month or Dementia Awareness Month (DAM), or even World Dementia Month. This name change has come about, to ensure inclusion of those who do not have a diagnosis of Alzheimer’s disease, but some other kind of dementia. It is…
If you are worried about getting a diagnosis of dementia, support somone with dementia, work in the field, or have been diagnosed with dementia, you will have seen the recent news on June 7, about the drug that the US Food and Drug Administration ushered in as a revolution for treating Alzheimer’s disease: approving aducanumab…
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