Driving and Dementia

Taking the Pedal Off the Metal: When Should Older Adults Stop Driving? Published by NIH News in Health, October 2021 “… some health conditions common with aging may make it riskier to get behind the wheel. Stiffer joints and weaker muscles can make it harder to steer or brake safely. Eye diseases and some medications…

Deinstitutionalisation of people with disabilities

It remains a high priority of mine, hence I have been campaigning for the deinstitutionalisation and de-segregation of people with any type of dementia of any age, and in fact, anyone of any age living in residential care for many years. This includes ‘memory units’ and ‘dementia villages’. Although two of the following Transforming Communities…

They love you, until you disagree with them!

According to Dan Evons the quote, “First they ignore you, then they laugh at you, then they fight you, then you win” is regularly misattributed to Mahatma Gandhi. Evon’s article on Snopes clncludes that it is most likely a combination of Klein’s 1914 speech combined with an attempt to summarize Gandhi’s nonviolent doctrine and philosophy. (Dan Evon,1 March 2016). I…

Changing roles at DAI

It’s time for a new chapter, and also a tad late to add this ‘old’ news today, especially as many of you who follow me here may have already seen this news on social media platforms, but in September this year, I tendered my resignation from the Board of Directors, and as the Chief Executive…

UniSA 2021 Alumni Award Recipient

Whilst I was proud to receive a University of South Australia Alumni Award recently, I still always wonder why. The inceasing level of activism, and the voluntary work and research (sometimes even paid!) that I have been doing since being diagnosed with a rare young onset dementia 13 years ago, and since co-founding Dementia Allaince…

You can lead a horse to water..

It is September, which in the world of dementia advocacy, is referred to as World Alzheimer’s Month or Dementia Awareness Month (DAM), or even World Dementia Month. This name change has come about, to ensure inclusion of those who do not have a diagnosis of Alzheimer’s disease, but some other kind of dementia. It is…

A chance to make history for people with disability

By highlighting dementia as one of the many health conditions causing disabilities, I am joining the more than 1 billion people with disability campaigning for change! It is your chance to make history; to help make a lasting change for 1 billion persons with disabilities worldwide, and I invite you to join the #WeThe15 campaign.…

Proof of disabilities and discrimination

In a recent article I read on MamaMia about a young woman having to prove her disabilities, I was struck by the similarity to my experience, and that of many others, of having to prove we have dementia. “In just over the past month, Rhiannon has received two parking fines. The first of which she…

Dementia through the disability lens

Whilst not specifically about Brain Health Awareness, I’m sharing a recent interview, which is 100% relevant to hope. I was delighted to be interviewed for the Aged Care Enrichment Podcast series, brought to us by SilVR Adventures and with their host Ash de Neef. It’s available wherever you get your podcasts from ⬇️ 𝗟𝗶𝘀𝘁𝗲𝗻, 𝗦𝘂𝗯𝘀𝗰𝗿𝗶𝗯𝗲 𝗮𝗻𝗱 𝗦𝗵𝗮𝗿𝗲 ⬇️…

Optimism, Resilience and your Attitude

As a long time optimist with an already high level of personal and professional resilience, brought up in a dysfuncitonal family where alcohol and mental illness were rampant, and never talked about, I have had to work on my resilience to maintain my optimism. This quote from Lou Holtz resonates with me, “Your talent determines…