A fellow activist and dear friend of mine from from Germany attempted to comment on one of my recent blogs about the lack of services or tangible change for people with dementia and their care partners and/or families. Unfortunately she had trouble getting the comments posted, so sent them privately, and with her permission I’ve…
On reading this article (last year), “The lost art of deep listening: Choose an album. Lose the phone. Close your eyes.” about listening to music, it begins with “What’s your favorite album? When was the last time you listened — actually listened — to it from start to finish? With intention, like you were watching…
Egos, money and power: these are the enemies we face. Not dementia. I’m starting to believe (may have have always believed), these are the things that have stopped real change and progress, with things like reducing stigma, discrimination, loneliness, and the abuse and neglect many of us experience, in care homes and also in the…
I’ve no idea who to thank, but, thanks to some kind person for the nomination. I’m thrilled to be in the top 150 in Australia; but I need your vote to make the top 25! Congratulations to everyone nominated and in the final list 👏👏👏👏 You can vote for up to three nominees here: https://www.surveymonkey.com/r/3NH5L9S
I wish to acknowledge the Traditional owners of the land we stand on as the first people of my country, and the oldest culture in the world. Australia Day 2021 presents us with a welcome opportunity to reflect on our recent challenges, respect those who put others before themselves and celebrate our resilience and unity,…
Hello there! It has been quite a while since I contributed to my own blog and website, and I feel like I’ve missed out on some great conversations. The one thing I love about feedback is that we get to hear about different views on topics, and even if we don’t agree with each other,…
“Don’t give up, you still have time to reach out and start again. Accept your shadows, bury your fears, release the last. Take flight again. Do not give up this life, continue the journey, follow your dreams. Unlock time, remove the debris and uncover the sky. Don’t give up, please don’t give in. Although the…
Happy New Year 🥳 2021. 2020 was definitely one to forget, but it has been a year of deeper friendships, determination and resilience to get through it together. Some of my wishes for everyone, on every day: Peace Joy Health Equal Access to Healthcare Rehabilitation Empathy Hope Well-being Kindness Courage Strength Friends An open ❤️…
The 13th session of the Convention of State Parties (CoSP) on the Convention on the Rights of Persons with Disbilities (CRPD) is on now; 30 November 2020 (in-person meetings: Opening and the election of the CRPD Committee members), 1 and 3 December 2020 (virtual meetings: roundtable discussions, the interactive dialogue with the UN system and the closing). This was…
A friend and colleague, Linda Steele recently published a book, Disability, Criminal Justice and Law: Reconsidering Court Diversion, and I was disapponted to miss the launch of it on zoom yesterday! I have just started reading it, so will report back on that at a later date, but I already have no doubt it will…
For more than a decade, I have regularly stated in writing or verbally that I believe people living in residential care facilities with locked doors, or in secure dementia units, are locked in jail, and that the only other people who are also routinely locked in jail are convicted criminals. Secure dementia units also equate…
This poem is dedicated to two people I love, and who have been struggling with significant changes in their lives…
The rights of persons with dementia most often continue to be ignored, and denied. In this series of webinars, I hope this is the beginning of change, at least in one area of post diagnostic support, namely, rehabilitation. My blog today is of my presentation at this series of webinars, which were hosted by Lee-Fay…
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