Welcome to my X, Y or Z Village

Over the last few years, the concept of Dementia Villages, Memory Cafes, Dementia specific shopping lanes, etc. has been growing, and worse, the villages are currently being lauded as ‘best practice’, in spite of there being NO evidence for them. Just like the Dementia Friendly Community or Dementia Friends initiatives, they were developed by people…

Doubting a diagnosis of dementia

In the last few weeks, there have been a few articles, blogs or tweets on the impact of others publicly doubting a persons diagnosis of dementia, which I am highlighting here for your weekend reading! One tweet by a professional last week claimed with certainty some people don’t have dementia. Whilst it didn’t name anyone,…

Lack of Evidence Based Research: BanBPSD

An an article published on October 2, 2018, Behavioural and psychological symptoms of dementia: GPs’ perspective on management highlighted to me on Twitter via Dubhgas Taylor, I want to highlight one of the problems we are facing. It reports on a ‘mixed-methods systematic review by Jennings and colleagues aimed to develop a better understanding of general practitioners’…

Rethinking Dementia: Normal Human Responses #12

Medicated and Motivated – NOT!!!!!! Questioning the abusive practice of chemical restraint. Guest blog by Leah Bisiani MHLthSc/DipBus/RN.1/Dementia Consultant Republished with permission as part of my Rethinking Dementia: Normal Human Responses series for World Alzheimer’s Month… #BanBPSD  “Elder abuse is one of the vilest indicators of ageist discrimination within our current civilization. Whilst the concealed ignominy…

Rethinking Dementia: Normal Human Responses #10

I really love this quote, and felt it quite relevant to this blog series about the need to #BanBPSD. Fronteirs in Neurology state: “Behavioral and psychological symptoms of dementia (BPSD), also known as neuropsychiatric symptoms, represent a heterogeneous group of non-cognitive symptoms and behaviors occurring in subjects with dementia.” Thankfully, at least in my opinion, there…

Rethinking Dementia: Normal Human responses #2

Let’s STOP Pathologising Normal Human Responses For #WAM2018, and on day 3, I am continuing my series of blogs, highlighting why many other people also believe we need to BanBPSD. On June 9, 2018 Susan Macaulay wrote an open letter to members of the dementia community worldwide, highlighted below. She outlines what happened to her…

Rethinking Dementia: Normal Human Responses #1

Rethinking Dementia Care by Banning BPSD For World Alzheimer’s Month this year, #WAM2018, I will be focusing on why I, and a growing number of others believe we need to Ban BPSD (the Behavioural and Psychological Symptoms of Dementia). Six people, myself included wrote a Letter to the Editor of the Australian Journal of Dementia…

Open Letter to Gabriella Rogers and Channel 9

Urgent Attention: Gabriella Rogers and 9News This letter is in response to the entitled “New Drug to Treat Behavioural Issues in Dementia Patients”, publicised on Aug.18th 2018 at 6pm. “This report misrepresents both the facts and the real-world experiences of people living with dementia.  The report positions all behaviour, moods and reactions within the frame of a dementia diagnosis…

Rethinking Dementia Care: #BanBPSD

Our first published Letter to the Editor, promoting the continuation of the campaign to ban the false construct known as BPSD (Behavioural and Psychological Symptoms of Dementia). A few years ago, Professor Dawn Brooker started a group called “GAP in Dementia Care”, which consisted of a large group of academics, dementia professionals and included people…