Women and Dementia #3 – DAM2015 Day 3

  Today’s blog is more personal and my rambling thoughts about my perspective as a wife and mother, of what it is like living with dementia, and the impact it has on me in those roles, and on my husband and children. When I was first diagnosed, the thought of not being there to see weddings, grandchildren,…

Empowering people with dementia

Why should we need empower ourselves, or help to empower others to speak up? Why don’t more people with dementia speak up? And why do they need to? From the perspective of empowering people in minority or marginalised groups, empowerment needs strong leadership, vision, passion, a ‘never-give-up’ attitude, and a significant strength of character to take the ‘shit’ dished…

Dementia Red-alert

The increasing load of living with a person with the symptoms of dementia on the BUB (back up brain or carer). The experience of travelling is becoming more difficult, especially for my BUB. He remains on red-alert as my distress levels and confusion go up due to the crowds, the noise and the lack of my…

Creative story or photobooks for PWD

 I’ve been reminded over the weekend (thanks Mandy S) of a woman called Anne Davis Bastings, author of a wonderful book Forget Memory. Mandy also alerted me to Anne’s TimeSlip’s Creative  Storytelling program and I recommend you have a look. There is another version of this type of storybook called Storybird and the poem created…

The emotional toll of letting go for a PWD

In a blog comment this week about me handing things over to my BUB, I responded with this; ‘I have had to give up a couple of things this week, and hand the responsibility over to Pete.’ I felt physically SICK doing this, and incompetent, and guilty having to do so… even though I know he…

Challenges for BUB’s

Recently my BUB (dear husband / back up brain) and I were discussing the impact of the constantly changing deterioration of my abilities, how it feels for him to watch it happening, and perhaps even worse than that, there is nothing he can do about it. Quite often he notices things before I do. I wondered how it is for…

Finding my way

A friend and newish follower of my Daily Digest has been lovingly overprotective of me the last few weeks since reading my struggles (thanks Deb xxx), kindly averting too much ‘volunteering’ work from coming my way from one organisation that has my heart forever. It reminded me of my husband the first couple of years after the…

The symptoms of dementia

People with dementia are labeled many things, from wanderers to absconders, to refusing to communicate, to non compliant! It is often written we have inappropriate behaviour. The symptoms of dementia, are regularly written up as the reason for the negative responses our carers have. As a person with dementia, I find this incredibly sad. People with dementia…

Bugger!!!

This is my second blog post today, making up for a day I accidentally missed; I am feeling quite annoyed with myself because I didn’t actually post the blog I wrote for Saturday 18th August! Yes, I know, my mantra is, Did anyone die? And if not, then it isn’t really a problem!!‘ It doesn’t always…

Medication and dementia

Well, it has come to this… I can no longer manage my medications. Even passing over the control of the scripts to my pharmacist and doctor last week is not enough as this does not prevent me taking the wrong time or days tablets at home, or taking tomorrows as well as today’s tablets, today.…