Living beyond dementia
Is tough
And sometimes even fun
But many days are torture
Days spent finding files
Many more losing them
Only functioning at all
Because of the support of our BUB’s
More than occasionally
We want to give up paddling…
And, it seems, one or two might prefer
I just stayed home and died…
Finding support from others
Also living with dementia
Friends who have become family
Who truly believe you
People who know
Exactly how hard the struggle is
Is also the key
And the most powerful antidote of all
To living beyond dementia
Is to not go home and die
At the time of diagnosis
Via aged care
Mick Carmody, Agnes Houston, Christine Bryden and many others living beyond dementia know exactly what I mean!
Copyright Kate Swaffer 2017
Beautifully written – to a “T” (insert a bit hug!)
Thanks… and big hugs to you too xx
Yer not dead ’til ya die and even then it’s debatable 😉
LOL!
Focus on the people who give you love and support Kate and leave the begrudgers to their own fate Sending you hugs (((O))) Liz
Thanks Liz… Sadly, the journalist, and those who defamed me, need exposing, as I feel a responsibility that this must not ever happen to another human being with dementia or any other terminal or serious illness. Silence, when you know something is wrong, is just as wrong. xxx
Beautiful.
Thank you Bruce
Dear Kate, My heart aches for your pain, trapped inside a body that fights you. And my heart aches with love for you in your tireless effort to reach out and help others despite the pain. Mary
Thank you dear Mary… for your friendship, support and love. One day, I do hope we meet beyond this virtual world! x
Kate, Keep on keeping on! Fondly, Michael
Doing my best, but these last few weeks, following some very malicious defamation, it has been a greater struggle than usual xx
All so true.
I’ve been adding more to a presentation this afternoon, for Ballarat’s ‘Small Acts of Love’ Dementia Symposium in February, about new friends and support from others, in my case especially from Glenys. It was a good exercise to reflect on and do. Just as you have many times.
But we are all too busy to just go home and die at the moment Kate. Too busy.
Thank goodness you also are too busy to go home and die John… and so many others living with dementia are as well! Big hugs always to you and Glenys xx
I hope Maureen does too Kate: thanks to your and others support to her BUB.
XOXOX