Yes, I am suffering… but only some of the time not every moment of every day And, importantly… not always from dementia more often from the language of dementia The symptoms of dementia do not consume me one hundred percent of the time Only some moments of some days and definitely not all days So why then must others…
This book has been a long time coming, and the release date has been delayed so many times, I had almost given up believing it would ever be released as a book, but instead would only ever be an idea. So, I am no sure it is even wise to have blogged a new release date…
I’ve written on this many times, but also feel, no matter how many times we talk about Neuroplasticity, and the brain’s ability to change and heal itself, it will never be enough as not everyone is yet listening. I am a firm believe, and have been for a very long time. I have also believed…
Christmas, brought to you by Woolworths BANNED: Channel 9 is refusing to run our new TV ad exposing Woolworths as Australia’s largest poker machine owner. Why? Because “Woolworths are a key business partner“. This is corporations banding together to stop us from exposing the truth about Woolies poker machines, designed to addict. Check out the ad…
If you are someone with dementia, or supporting a person with dementia, remember they may have hurts and losses, perhaps even similar to what I describe below, but consciously or unconsciously exacerbated with all the ‘joy’ of an occasion like Christmas, that is ripping up their heart inside, and making them seem more anxious, upset or angry. They…
I might have mentioned an online friend who is sending me YouTube links to Willie Nelson tracks for Christmas. So, it seems, Paul is another man in my life, and having some impact as well! The downside to this, if there is one, is that I have no desire to write blogs, and just want to sit…
This is a simple, succinct quote on who’s got the problem in caring for or communicating with people with dementia, and if this point was taken seriously, and considered fully in the dementia sector, 90% of the so-called ‘challenging behaviours’ we are so negatively and glibly labelled with would probably never surface… If you can’t understand…
It an odd thing to admit, but there are a few important men in my life, behind my husband and two sons, oh, and of course, Mr Boris the cat!!! I have many other male friends, including one I have not met in person (yet!), who today sent me a lovely Christmas present, a link to a…
Breathe deeply Take a moment to relax Stop and smell the roses or lavender Take a bath or a swim Look in the mirror and say to yourself I am ok Have lunch with those you love Laugh, live and love More often In between the fast lane Called life in the 21st Century!
It is truly wonderful to see this project, and the work in the Kiama Municipal Council and University of Wollongong being recognised for its significance, and I am proud to call many of the people in the video my friends and to have been a part of the work there. Personally, I believe the Dementia Friendly…
This particular Article of the UN CRPD sounds so simple, and yet, in reality, it is not happening for many people with any form of disAbilities, but even less so for people with dementia as we have not even been recognised as having the same rights (yet!!). In my own experience, I was not afforded,…
If giving the world the best I have, means I get kicked, loved, or ignored, it is still my choice to give it my best, and to speak up for all people with dementia, for our human rights, our disAbility rights, and for inclusion, no discrimination, reducing stigma and isolation, and for respect, including respectful…
One of the biggest challenges for me is letting go of the abilities I once had. Yes, I know it is easy to say, “but you can still do so many things”, but let me just say how devastating it is having to let go of functioning. I am not talking about physical functioning, as…
It seems my focus on our basic human rights, and disAbility rights, is keeping me focussed on the UN CRPD this week, and I suspect this is where I needed to be about six years ago when I first started speaking out as an advocate… better late than never! 🙂 Seeing the person, not the dementia or…
You must be logged in to post a comment.