‘Ellen Louise Pence (April 15, 1948 – January 6, 2012) was an American scholar and a social activist. She co-founded the Duluth Domestic Abuse Intervention Project, an inter-agency collaboration model used in all 50 states in the U.S. and over 17 countries. A leader in both the battered women’s movement and the emerging field of institutional ethnography, she was the recipient of numerous awards…
Over the last few years, but especially the last few months, I feel like I have finally found my tribe, or perhaps, I have found a new tribe. This emerging and growing group of people I have come to know, either through social media, zoom and even a few who I’ve met in person, not…
Long term care (LTC), is one term used to describe congregate living style settings including nursing homes and residential aged care institutions; most countries have their preferred term, as do academic journals. As a humanitarian and campaigner for civil rights and social justice, I’m becoming increasingly aware, and more educated on why these locked assisted…
Todays’ blogpost begins with a petition I have signed, and which I’d encourge you to read, sign and share. Please. People with dementia should not be harmed by drugs that are fast tracked for approved, after accelerated drug trials, and which are known to be unsafe. People with dementia are not lab rats or mice.…
‘How can we redress and repair violence, abuse and neglect of people living with dementia in residential aged care?’ People living with dementia have been subject to significant harm, including violence, abuse, and neglect in aged care in Australia. Yet, this harm is rarely recognised and redressed. People living with dementia in aged care, as well as…
A colleague and friend Tina Minkowitz* works towards the rights of survivors of psychiatric abuse, and runs a course for activists and allies on the Convention on the Rights of Persons with Disabilities from a Survivor of Psychiatry Perspective. Her article on disability and incarceration is worth a read, even if you don’t have time…
I’m a member of the Australian OPCAT Network, and with permission, am posting a revised version of the contents of an email from the network here. As people with dementia living in residential aged care which they are locked in, and segregated, they too are living in places of detention, hence my interest in OPCAT.…
The University of Wollongong (UOW) has developed a program to ensure their community of students and staff are included, valued and respected. This is so much better than the dementia friendly initiatives, which has done so little to improve the respect and inclusion of people with dementia. Not have these initiatives reduced the stigma, discrimination,…
Anyone who has followed me here for a while will know that in 2008, following a diagnosis made by my neurologist of a young onset dementia, I was advised to prepare to die, via aged care respite, which I ultimately trademarked as, Prescribed Disengagement. I was not supported to live well, or positively at all,…
As I return to more regular writing and posting on my website, which is helping me to regain my own inner equilibrium, and sense of purpose, as the narrative therapy aspect of journalling has been restored. Every day, I continue to read others words using the various disability techniques now required for reading, and for…
In research and journalism, and one would think, in most businesses too, anyone publishing an article or story, setting up a business, or applying for a new research grant, would have done a significant amount of research into the topic, so that 1) it is based on facts, 2) so as not to reinvent the…
The Chief Executive Officer at Women’s Community Shelters, Annabelle Daniel OAM, wrote an interesting post on LinkedIn recently, which began with Albert Einstein’s quote: ‘The definition of insanity is doing the same thing over and over and expecting different results.’ With the greatest of respect and with very much love for the fierce and wonderful…
I’m unflinchingly determined to continue to expose what I believe to be human rights violations in particular against people living with dementia, of any age, and of our families. That someone else may not see something I beleive to be a violation, or that I am accused of being wrong, or of blaming people for…
On Ageism Awareness Day 2022, I have pledged with Every Age Counts and also here: I STAND FOR A WORLD WITHOUT AGEISM To promote awareness of violence, abuse and neglect in residential aged care in Australia (and globally, I also wish to share a blog posted this week on the Dementia Justice website, on the…
Tina Minkowitz is a lawyer in the USA, who was involved in developing the Convention on the Rights of Persons with Disabilities (CRPD). Tina is also a survivor of psyiatric abuse, and a human rights lawyer, and interested in workign towards reparations for psychiatric violence, for example, for psychiatric institutionalization and abuses such as chemical…
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