The Routledge Handbook of Disability Activism

The onslaught of neoliberalism, austerity measures and cuts, impact of climate change, protracted conflicts and ongoing refugee crisis, rise of far right and populist movements have all negatively impacted on disability. Yet, disabled people and their allies are fighting back and we urgently need to understand how, where and what they are doing, what they…

The 20th century view of dementia continues…

Try as I might, I am currently really struggling to convince a group of global researchers on the importance of adding two simple things to a list of possible interventions following a diagnosis of dementia. It has got to the point, I feel discriminated and stigmatised by them, as most in the group generally seem…

Life is a roller coaster

In my blog The impact of Betrayal Trauma, published quite recently (although it says it was posted in January), it seems to have opened up a few wounds and hearts of many others I’ve been talking to. It is especially sad to know this is such a familiar and common experience, and I go back to…

Person Centred Planning for Death

Image source: Kate Swaffer Recently, there has been an online discussion somewhere on Facebook (I can’t find it to refer to it) about what needs to go into what in Australia, we call “Advance Care Directives” (updated from Advanced since being indirectly corrected via twitter). I have had a legal will, and both a legal…

Inspired by a film about truth

The short Vimeo I am posting below today was made by a friend and colleague in Scotland, which I found to be incredibly profound. For me, it spoke mostly about truth. But it also speaks about lies and deception, and arrogance and the lack of scrutiny. As I have become what others often tell me…

Setting up an exercise plan

I subscribe to many newsletters, possibly too many, but it is easy to delete them if they are of no interest.  This one came in today from the National Institute on Aging at the NIH, and as I am about to embark on a more disciplined exercise regime again, I thought it was useful. One…

We need to Ban BPSD before it’s too late…

The following article which is about a 5 year research project is truly terrifying, and only confirms my committment towards the need to Rethink Dementia and ban BPSD. It is thanks to Tina Minkowitz who is an attorney and psychiatric survivor in New York, and founded the Center for the Human Rights of Users and Survivors of Psychiatry, that…

Understand with your heart

The last few months, I have noticed a lot of changes in my physical and cognitive health, and have watched on as so many others are struggling with worsening or new health issues, or facing difficult personal challenges. It is worrying, and on some days, it would be so easy to give up not only…