I’ve thought often about the truth of this particular quote, which ironically, although most often attributed to Mark Twain, is probably not by him. In a funny twist of humour, it also highlights how accurate the quote is! Em T. Wytte blogs about writing, and I found the image used, and a blog about the…
Recently, I started to become interested in the work of a psychologist, Dr Roger McFillin, and after listening to multiple Radically Genuine podcasts and interviews and reading his posts on social media, decided to join the Conscious Clinician Collective. This initiative is open to everyone, not only clinicians. That is, anyone with an interest in…
Dementia is of course, a topic that is quite rightly covered during the World Health Assembly (WHA). Members and staff of some of the dementia charities such as Alzheimer’s Disese International (ADI) attend, host side events and so on. I’ve attended a few of them, including the 2017 WHA when the Global Action Plan on…
It is time to write the second Edition of this book, which will be an Audiobook, especially as this first edition needs an update. I’m looking forward to being able to launch the audiobook, but especially to updating a few of the chapters in my first book, as not only have my opinions changed since…
It’s great to see new dementia advocates inspired and empowered to start speaking up for change. What’s disturbing though, is that after more than four decades of it, ‘we’ are asking for exactly the same things as the pioneer dementia advocates including Christine Bryden and James McKillop (who were both diagnosed in the last century),…
My inner rage, sometimes quiet, sometimes more obvious and loud – against the persistent status quo, particularly in the field of dementia ‘care’ is not meant to be personal, not to any individual, or to any organisation. I am well aware and often say in presentations that almost everyone I know goes to work (paid…
My blogpost today is to invite interested health professionals to participate in a study run by Monash University. A/Prof. Michele Callysa is the lead Chief Investigator (CI) on this project. I am also a CI, along with many other colleagues. Scroll to the bottom of this blog for more information, and for who to contact…
Chapter Review by Elizabeth Deane McCarthy, Student of Ageing and Public Policy, 2024 “Coming from a background of Mental Health Nursing (Training completed during the COVID pandemic) with a special interest in Dementia, I picked up Ageing of the Oppressed and couldn’t put it down. Kate Swaffer’s chapter ‘About Us Without All Of Us: The…
As persistently found in past blogs, I don’t (and defintiely no longer) blog regularly! Anyway, whilst searching for one specific to living, not only dying from dementia, I started reading old blogs, and decided to post this one today, from my Living Beyond Dementia site. We are all born with a death sentence, so there…
Two webinars on deinstitutionalisation: “Ordinary lives” Todays post is to highlight two important webinars being hosted by the European Network on Independent Living, coming up soon. The United Nations Deinstitutionalisation Guidelines released in 2022 refer to all people with disabilties, which therefore includes people living with dementia. People with dementia are not only locked inside…
Taking the Pedal Off the Metal: When Should Older Adults Stop Driving? Published by NIH News in Health, October 2021 “… some health conditions common with aging may make it riskier to get behind the wheel. Stiffer joints and weaker muscles can make it harder to steer or brake safely. Eye diseases and some medications…
For some, reading my chapter in this book may feel like I’m ripping off a Band-Aid, or worse. It may feel like a betrayal. It may sound ‘angry’. There will definitely be moments of discomfort, denial, and even disbelief that a ‘retired’ dementia self-advocate could, and would dare to say many of the things I’ve…
On behalf of Linda and myself, I’m providing an update on our research project and provide links to our project resources, as well as a recording of the launch event. I was privileged to work as an Associate Investigator on this project with Dr Linda Steele. Our latest post, Launches, Publications, and Advocacy: A Busy Time…
I’m motivated to post a blog here today because of an article I read written by Dom Kelly, who is a co-founder of the New Disabled South, an organisation devoted to fighting for people with disabilities in the South, where issues like poverty, voting rights, and criminalization disproportionately impact the disabled community. In Australia, these issues…
The Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability recently released a commissioned research report into the use of ‘restrictive practices’. The Restrictive practices: A pathway to elimination research report, compiled by researchers from the University of Melbourne, the University of Sydney and the University of Technology Sydney says restrictive practices…
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