“Be informed, inspired, incentivised, indignant, & incensed” was the heading of NCDAllliance Forum 2017 Update on December 11, 2017. The update began with this powerful quote from Katie Dain, CEO of the NCD Alliance. “We urge you to continue the conversations you started here. Continue communicating with partners – both old and new. Continue listening to and…
About Universal Health Coverage Day I’m still in Sharjah, hence it is still the December 12 here, which each year is Universal Health Coverage (UHC) Day. I felt it important and extremely relevant to publish this blog today as UHC is something that has been missing in action for people with dementia and our families…
A few weeks ago I presented at an event as an opening keynote speaker; when my agent asked for a speakers fee, they were advised there was no budget for this. I agreed anyway, as believe it is important to talk about human rights, and to represent DAI. However, disturbingly, during one of the breaks on…
On Wednesday afternoon this week, my husband and I attended the State Parliamentary session of the Legislative Council in Parliament House, Adelaide. The Hon Kelly Vincent MLC, the fearless and remarkable young woman who is the Leader of the Dignity Party in SA, made a motion recognising me for winning the SA 2017 Australian Of…
This week I was asked to provide some information about one of DAI’s founding members, the late Richard Taylor Ph.D. I headed to my files (word and emails) simply titled: Richard Taylor. It was an opportunity to reflect when not feeling hopeless, as it’s often Richard who I turn to when I want to give up…
My blog is a bit rambling today, as it talks about death and dying, cognitive capacity and other related topics. Sorry if I should have made it three or four blogs, but I’m here so rarely these days, I took the chance to finish writing it, and this is what I (therefore we) have ended…
In the last few days, someone asked me for this list/graphic of a power point slide I have of it, but I cannot find my notes, nor remember who, hence I am reposting it here today. Please feel free to download it and share it, but also reference it to me. Thanks. And I hope…
Today is Mental health day, started 15 years ago, and whilst not necessarily something to celebrate, it is positive that we are talking about and thinking about mental health as almost everyone has been impacted by mental health issues personally, or someone they know has. As dementia comes under the umbrella of mental health at…
My changing ability to work out not only how to cook, but what to cook, what to shop for, and so on, will ultimately result in the reality that sooner or later, we should be ordering in our weekly evening meals. My dear husband Peter, also known affectionately known as my BUB around the world, has,…
Most years, I am more than frenetic throughout September, ensuring Dementia Alliance International (DAI) has blog content to post for every day of World Alzheimer’s Month also know as Dementia Awareness Month, and blog content to post here every day. For all sorts of reasons, including health, that has not been possible. I have certainly been wondering,…
Ok, so maybe I’ve got it wrong (again or still!), but surely focusing on what people without dementia think dementia might be like and spending vast amounts of money on virtual reality products to show more people without dementia what it is like for us seems a little off base to me. One or two…
This is a Seminar you can attend in person (limited spaces), or attend as a Webinar online, the first Dementia Alliance International event, being co-hosted with the Dementia Advocacy Awareness Team in Brisbane, and supported by BlueCare: Live life your way. Register here… You can also download the flyer below.
Firstly, happy 50th to one of my new friends Sarah Yeates. We met as I was invited to speak to her organisation, then she offered to become a volunteer for DAI, and now, I would consider we are friends. I was disappointed not to be able to travel to Victoria on the weekend just gone…
It was a day of interesting opportunities and challenges having a film crew in my house (sometime earlier this or last year – I can’t remember as I started writing this blog the day after). The denial bubble we prefer to live in disappeared that day, as we had to focus on what it is…
On one of my other websites Living Beyond Dementia™, I have posted part of an article from The Radical Respite Project. Living beyond dementia is still not overly acceptable publicly, as the media still wants the stories of ‘tragedy and suffering’, and when people with dementia refuse to go home and die via aged care, they…
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