Webinars – Dementia: Rehabilitation Matters!

You are invited to register for two important webinars being hosted by Sydney University, Associate Professor Lee-Fay Low and Professor Kate Laver on why rehabilitation for people with dementia matters, to launch their new book, Dementia Rehabilitation: Evidence-Based Interventions and Clinical Recommendations. Webinar 1 : Rights, communication, comorbidities. Webinar 2: Work, exercise, play About the…

Rethinking Dementia: Normal Human Responses #5

In my #BanBPSD for #WAM2018 blog series, I am posting a comment received after an earlier blog in this series; often it is a comments like this that motivates me to keep writing and advocating for change. My blog today is short, but hopefully makes sense. Jeff’s comments kept me awake, and in tears for…

Music to chill to…

It has been one very busy month and I have posted lots of blogs that have still got me thinking! Hopefully they have made you think too, rather than offended or upset you. My intention is to have an honest, open global conversation, about the things that really matter, not to offend. If we speak…

BPSD vs BPSC-19

I’ve written many time about BPSD or ‘challenging behaviours’ as well as what I have termed BPSC-19, but the comparison may not be obvious to everyone. Hence, for day 27 of Dementia Awareness Month in 2020, I decided to list the ‘symptons’ of each here. If we check out the two lists we could be…

Just because you can’t see it…

You may not believe it, or see it, but people with dementia are still being Prescribed Disengagement®, and only supported to die, rather than to live positively. You may not believe it, but if you have a stroke, you will recieve rehabilitation, whereas if you are diagnosed with dementia, you won’t. You may not believe…

Inclusion… or exclusion?

We are well over half way through Dementia Awareness Month, and I’m tired, but continuing with my daily blog series, in an effort to create new thinking, and discussion. Some of the topics I’ve chosen are difficult to write about, like this one,. They may even cause offence to others, including causing dissent amongst some…

Activist and Activism: what do they mean?

In the last year or so, many people with and without dementia have started to document the history of what they perceive as dementia advocacy and/or activism. It almost feels like it is being done, as if to justify that the last more than two decades of advocacy have been worth it, and so I…

Dementia and disAbility

It’s an Interesting time in dementia advocacy, and I’m currently witnessing a lot of justification or rationalisation that the last 2+ decades of advocacy have been worth it. In part because of that, I have been reading lots of my old blogs, just to see what I have previously thought and said about things, and…