World Awareness Month 2018 is well underway and #DAI continues to run their daily series of #Hello my name is blogs to raise awareness of dementia and to share our members stories However, this month, I am maintaining focus on my #BanBPSD blog series. Hence, I have put together the following list! Whatever we do, whoever…
In my #BanBPSD for #WAM2018 blog series, I am posting a comment received after an earlier blog in this series; often it is a comments like this that motivates me to keep writing and advocating for change. My blog today is short, but hopefully makes sense. Jeff’s comments kept me awake, and in tears for…
In today’s blog post, I am highlighting a piece written by Sonya Barsness, The Faces of BPSD published recently. Sonya is a gerontologist, and it says on her blog; “I am a bit of a rebel – I like to challenge thinking – and revisionist is a term that seems to capture this. A revisionist is…
This may seem a radical statement, but I sincerely believe it. It is time everyone, especially the health care professionals and educators still so heavily invested in BPSD think more deeply about it. We must find new ways to teach dementia care that better serves the client – to live more positively, and which is free of…
Rethinking Dementia Care by Banning BPSD For World Alzheimer’s Month this year, #WAM2018, I will be focusing on why I, and a growing number of others believe we need to Ban BPSD (the Behavioural and Psychological Symptoms of Dementia). Six people, myself included wrote a Letter to the Editor of the Australian Journal of Dementia…
Our first published Letter to the Editor, promoting the continuation of the campaign to ban the false construct known as BPSD (Behavioural and Psychological Symptoms of Dementia). A few years ago, Professor Dawn Brooker started a group called “GAP in Dementia Care”, which consisted of a large group of academics, dementia professionals and included people…
The many words used when a person first makes it public knowledge They have been diagnosed with dementia are words like #brave #courageous #inspiring Then, if we dare to live too positively with it We are told we don’t look like we have dementia. The only thing really needing true grit, bravery and courage Is…
Ok, so I maybe I’m being overly melodramatic, and need to apologise up front for my heading! But really… #WTF… Like we needed the British Geriatrics Society blog to tell us yoga is good for us, and then they refer us to a research project in the Age and Ageing Journal, published in 2018, saying…
In my collaborative #BanBPSD campaign, today I’d like to talk about wandering. This term, along with ALL of the other negative labels in the BPSD guidelines, must become part of the list of words NOT to use in dementia language guidelines. My lovely BUB found and bought this lapel badge for me recently… I’d really…
A diagnosis of dementia The ultimate and final weed-killer More sure to work than Round Up And although environmentally friendly Definitely not humanity friendly With an open heart And a willingness to overcome the loss One is left with only honest and loyal family friends And a global ‘dementia family’ Making dementia Possibly the greatest…
Thanks to Tracey Maxfield for this quote. These are probably the exact same reasons people with dementia appear upset or ‘ANGRY’! Except, they get blamed for it, the pathology of their dementia is seen as the root cause, hence they get restrained, physically or chemically, for their so-called BPSD!!! Hence our #BanBPSD campaign… My only modification…
I’ve been a reader of Kahlil Gibran for most of my life, and his book, The Prophet is my favourite. Last night, I had my very foundations of my soul and heart shaken to the core, after receiving an email from someone I thought to be a true friend and remarkable dementia advocate, suggesting the work…
A wonderful lunch to celebrate turning 60 With my immediate family And my very special friends and chosen family I love you ALL Missing some special friends and family Some unable to be there So many no longer with us My actual birthday, the anniversary of a friends husbands death The death of a…
Many people with dementia or their families and care partners do significant amounts of unpaid work for their own self advocacy, or for advocacy and many other organisations. DAI as an organisation, and one I am truly proud to be a co-founder of, does this as well. DAI provides speakers for conferences, events and publication launches,…
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