Activist and Activism: what do they mean?

In the last year or so, many people with and without dementia have started to document the history of what they perceive as dementia advocacy and/or activism. It almost feels like it is being done, as if to justify that the last more than two decades of advocacy have been worth it, and so I…

Rethinking Dementia Care by banning BPSD

Two years ago I published a series of blogs focused on the need to rethink dementia care, to reframe dementia entirely, on dementia as a major cause of disability, but most especially on the need to ban BPSD (Behavioral and Psychological Symptoms of Dementia). The Coronavirus pandemic has almost proven BPSD is a false construct,…

Dementia and survival

Dementia and me What the hell happened to my braindiagnosed with dementia when I was much too youngmy children still at schoola deadly terminal disease effectingmemory, thinking, perception, judgment, language and speech But worse than that, effecting mylife, family, friendships, my sense of self, my identityand a bucket load of guilttruckloads of stigma discrimination and…

Unexpected consequences

It was recently Father’s Day in Australia, which for me, is possibly the the equal worst day of the year. For those of us who’s parents are or were abusive, it is not a great day. It actually hurts when the loving relationships are so publicly highlighted as if all relationships between children and parents…

Rethinking Dementia, 2020

Apologies this post was accidentally published yesterday, when is was meant for today, day 2 of #DAM2020! Arrgghhhh! It is easy to hit the wrong button! Anyway, onto much more important things. The need for everyone to rethink dementia continues to be highlighted in the many stories of neglect, abuse, restraint and deaths in Residential…

Looking back, to move forward

This blog started 9 years ago, and so I decided to review and add here, one post per year from August, to see what, if anything has changed, and also how my writing and thinking has evolved. My aim is to provide an authentic voice, to be a true advocate, and not to be persuaded…

Focusing on Brain Health

Many who have followed me here for a while will know I have adapted my lifestyle and focused on brain health as tools to help live more positively with dementia. Due to some personal stress and grief, I’ve been rather unfocussed! Hence, I really need to focus on brain health again! There is actually a…

Australia will need to say ‘Sorry’ (again!)

As the time to provide a submission to the Royal Commission into Aged Care Quality and Safety draws to a close, I remain deeply concerned nothing will change, in spite of the more than 8000 submissions, millions of dollars spent on the Royal Commission, and any likely outcomes or ‘recommendatons’. Historically, the Australian government chooses to…