It is day 1 (in Australia) of World Alzheimer’s Month, which many of us prefer to call Dementia Awareness Month #DAM2020 to help prevent people with a dementia other than Alzheimer’s Disease (AD) feel excluded by the campaign. It’s been a long haul emotionally and physically lately, with many personal stresses, and a recent major…
Early today I joined a Twitter chat for the release of a book by my good friend Dr. Shibley Rahman @ShibleyRahman titled Essentials of Delirium. It was hosted by another friend in the UK, @DiverseAlz and if you are on twitter, you jcan follow the feed via the hashtags #DeliriumEs and #DiverseAlz To kick off…
Following my blog yesterday, Looking back, to move forward, I felt it important to highlight one comment made, as a separate blog. I had replied by saying I was saddened by such a comment, but not surprised. “A prominent ER doctor addressed an online group I was in developing guidelines for people with dementia admitted…
This blog started 9 years ago, and so I decided to review and add here, one post per year from August, to see what, if anything has changed, and also how my writing and thinking has evolved. My aim is to provide an authentic voice, to be a true advocate, and not to be persuaded…
You are invited register for the August 2020 DAI “Meeting Of The Minds” Webinar”, What People Living with Dementia Teach Us About Our Shared Humanity presented by Professor Emeritus Steven Sabat. Wednesday, August 26, 2020 (USA/CA/UK/EU) Thursday, August 27, 2020 (AU/NZ/ASIA) Please note: this is one event, set in a number of different time zones. Register here… About the…
A troubled past in the multimillion-dollar nursing home empire of Epping Gardens “The company that owns the coronavirus-plagued Epping Gardens aged care home in Melbourne also runs another home in Sydney which scored zero out of eight in a quality assessment last year.” Read the full article here… Sarah Holland said it for me. Shocking.
First published on my Living Beyond Dementia™️ website June 30, 2018. Anyone who follows this site knows I have been a believer in Bredesen’s Protocol, although I do have some healthy scepticism as well! In saying that, I believe if we don’t view dementia as a chronic disease, which brings with it acquired cognitive disabilities,…
I will only feel like I’ve achieved my advocacy goals when we are all FREE. Free: – from stigma for having dementia – from discrimination due to dementia – from confinement in nursing homes – from segregation in secure dementia units – from chemical restraint – from physical restraint – from Prescribed Disengagement®️ – from…
I’ve been around mean people and they’re not pleasant to be around, not do I want to be like them. Thankfully, or hopefully, I have learned to move away from the truly unkind people who have consistently bullied, abused, harmed or betrayed me… and I will continue to question most things!
Many who have followed me here for a while will know I have adapted my lifestyle and focused on brain health as tools to help live more positively with dementia. Due to some personal stress and grief, I’ve been rather unfocussed! Hence, I really need to focus on brain health again! There is actually a…
Below is an past interview on CBN with Professor Dale Bredesen, who is an international expert in neurodegenerative diseases. I first published it in 2019 on my Living Beyond Dementia™ website, which is no longer active, so I have decided to transfer most of the blogs over to this site. The friend (SHA) who alerted…
An Australian organisation called Beyond Blue which is focused on supporting mental health said in a recent article it: “Recognises and understands the feelings of anxiety, distress and concern (BPSC-19) many people may be experiencing in relation to the coronavirus (COVID-19) and offers some advice on how to look after your wellbeing.” Beyond Blue is…
DAY/DATE(S): Wednesday, July 29, 2020 (USA/CA/UK/EU) Thursday, July 30, 2020 (AU/NZ/JP/SGP/TWN) Please note: this is one event, set in a number of different time zones. Register here… About the Webinar: People with all forms of dementia can experience changes to their walking and balance. There are many factors that can contribute to these issues that can be…
It feels important to (re) acknowledge the challenging nature of these times and I do sincerely hope you are all safe and well. I also want to thank those who have reached out to me at this time of deep grief, here, on social media and by phoning me or calling in. Words do not…
I am more than my ‘lived experience’ of dementia. Seriously. And I am much more than just a ‘Dementia Advocate’. True. Many years ago, I started advocating for people with dementia who are invited speakers to be listed on the program by more then their disease. Back then, not even the persons name was added.…
You must be logged in to post a comment.