According to Dan Evons the quote, “First they ignore you, then they laugh at you, then they fight you, then you win” is regularly misattributed to Mahatma Gandhi. Evon’s article on Snopes clncludes that it is most likely a combination of Klein’s 1914 speech combined with an attempt to summarize Gandhi’s nonviolent doctrine and philosophy. (Dan Evon,1 March 2016). I…
The Dementia Redress project is funded by the Dementia Australia Research Foundation The research project ‘Redressing Abuse and Neglect of People Living with Dementia in Residential Aged Care’ is being led by chief investigator of the project Dr Linda Steele fom the University of Technology, and Kate Swaffer, as an Associate Investigator. Dementia Alliance International (DAI)…
It’s time for a new chapter, and also a tad late to add this ‘old’ news today, especially as many of you who follow me here may have already seen this news on social media platforms, but in September this year, I tendered my resignation from the Board of Directors, and as the Chief Executive…
Whilst I was proud to receive a University of South Australia Alumni Award recently, I still always wonder why. The inceasing level of activism, and the voluntary work and research (sometimes even paid!) that I have been doing since being diagnosed with a rare young onset dementia 13 years ago, and since co-founding Dementia Allaince…
ABSTRACT SUBMISSIONS CLOSES ON 5 NOVEMBER 2021 Dear friends and colleagues, It has been some time since I posted anything here. Life has been busy, and at times, getting in the way! However, I wish to highlight that Alzheimer’s Disease International (ADI) will host their next global conference, 8-10 June 2022, as a hybrid event,…
I’m thrilled to share the release of an important book today, written by a friend and colleague, Tina Minkowitz. It is is now available to be ordered at this website: https://www.reimaginingcrisissupport.org It is being made available at cost, so print copies are low priced (though international shipping charges are high and that makes it more expensive…
Thank you Brené Brown, for this timely reminder that it’s not just ok to stand up for what we believe in, to say the unsaid, it’s worth doing even if we are alone. It is sometimes lonely daring to bring light to stuff that’s been pushed into or kept in the shadows, especially when the…
It is September, which in the world of dementia advocacy, is referred to as World Alzheimer’s Month or Dementia Awareness Month (DAM), or even World Dementia Month. This name change has come about, to ensure inclusion of those who do not have a diagnosis of Alzheimer’s disease, but some other kind of dementia. It is…
Mondayby Alex Dimitrov I was just beginningto wonder about my own lifeand now I have to return to itregardless of the weatheror how close I am to love.Doesn’t it bother you sometimeswhat living is, what the day has turned into?So many screens and meetingsand things to be late for.Everyone truly deservesa flute of champagnefor having…
In an email received today from the curator of information provided to members of the Australian Optional Protocol to the Convention against (OPCAT) Network, I was alerted to a recording of a session about how jails are failing us all, including the prisoners and their families, and the taxpayers. My interest in the Optional Protocol…
By highlighting dementia as one of the many health conditions causing disabilities, I am joining the more than 1 billion people with disability campaigning for change! It is your chance to make history; to help make a lasting change for 1 billion persons with disabilities worldwide, and I invite you to join the #WeThe15 campaign.…
In a recent article I read on MamaMia about a young woman having to prove her disabilities, I was struck by the similarity to my experience, and that of many others, of having to prove we have dementia. “In just over the past month, Rhiannon has received two parking fines. The first of which she…
I will always love you too…
On the last day of Brain health Awareness Month, it seemed appropriate to write about something I have been campaining for in varoius ways, for alost as long as I have had dementia. I’ve campaigned often to refer to (re-label) an activity as normal as walking, instead of labelling it as wandering. Something as simple…
Whilst not specifically about Brain Health Awareness, I’m sharing a recent interview, which is 100% relevant to hope. I was delighted to be interviewed for the Aged Care Enrichment Podcast series, brought to us by SilVR Adventures and with their host Ash de Neef. It’s available wherever you get your podcasts from ⬇️ 𝗟𝗶𝘀𝘁𝗲𝗻, 𝗦𝘂𝗯𝘀𝗰𝗿𝗶𝗯𝗲 𝗮𝗻𝗱 𝗦𝗵𝗮𝗿𝗲 ⬇️…
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