“Diagnosed with Alzheimer’s or another dementia”

The book Diagnosed with Alzheimer’s or another dementia, co-authored with Associate Professor Lee-Fay Low was released officially on September 15 and has been well received. Professor Henry Brodarty wrote the Foreword for it, which I am sharing here: Thank you Lee-Fay for the shared twelve months we spent working on this book; it was truly a joy to work…

What is dementia? Part 4 – Understanding Aphasia

In my continuing series on What is dementia?, Part 4 I promised to review aphasia. It suddenly seems more relevant to me as well just now too; I was diagnosed with PPA when first diagnosed with a front temporal dementia, although had seemed to stave off the progression with speech pathology techniques. However in this last few weeks, it is…

Dementia Research Participant Opportunity for Australians

Participant Information Sheet (General) Project Title: The what, how and why of complementary medicine use by Australians living with dementia. Project Summary: You are invited to participate in a research study being conducted by Dr Genevieve Steiner, NHMRC-ARC Dementia Research Development Fellow, at the National Institute of Complementary Medicine (NICM), Western Sydney University. This project…

What is dementia? Part 3

In my continuing series on What is dementia?, for part 3, I am explaining in more detail, the two infographics published earlier this month.Please do let me know if I have any information incorrect! I am doing my best to ensure it is both accurate and easily understood by those of us living with or supporting…

What is dementia? Part 2

There is no time today to write a blog, or for anything other than adding this graphic, which is also from our book, Diagnosed with Alzheimer’s or another dementia released last week. Like the umbrella graphic from a couple of days ago, this does not outline every single symptom, but is an overview of what to expect…

“What is dementia?” Part 1

Currently I am working on a piece titled “What is dementia?” which I have decided to turn into a short series of blogs. So often, I am asked questions that I had imagined health practitioners would (and should) actually know the answers to if they are working in the field of dementia, but even some of the…

Grateful for the positives…

Yesterday I had the pleasure of being a guest speaker at a Baptist Care “Stories of me” event in Sydney; a long way, and tiring, but worth it as it is imperative our voice is heard or nothing will ever change. The event was really interesting. It is always poignant for me to listen to family care…

Time stands still

It’s a very strange place Inside a Graviton Thoughts swirling around Inside my head Lost to reason Memory disappears in 10 seconds Time stands still The blank page stares back Life with dementia In spite of the gifts Of living beyond dementia Are the moments of despair

The impact of false hope

For my continuing series of World Alzheimer’s Month / Dementia Awareness Month 2016 #WAM2016 #DAM2016 blogs, the post today is about the impact of hearing and reading about possible cures, and failed research. Members of Dementia Alliance International, and the much wider community of people with dementia and our families, are constantly being bombarded with this or that…

Remembering Richard Taylor

In my series for Dementia Awareness Month 2016 #DAM2016 #WAM2016 of blogs, today again I continue to remember family and friends who are no longer with us, but who also were diagnosed with any type of a diagnosis of dementia. Today I remember the late Richard Taylor Ph.D. A hero is an ordinary individual who finds…

Coming soon: “Diagnosed with Alzheimer’s or another dementia”

Well… coming, but perhaps not soon enough! We were promised this would be ready for Dementia Awareness Month, and yes, I suppose it will we, but not until the 15th at least , so disappointing not to be able to tell you it is available now when we are four days into the month. Even the websites…

Remembering Michael

It is technically Day 2 or Day 3 of World Alzheimer’s Month 2016 or Dementia Awareness Month 2016 #WAM2017, depending on what time zone you are in! Anyway, I decided, for want of the capacity to be more original, to dedicate some of my blogs this month to those family or close friends who I have…