In 2015, Dr Al Power, Daniella Greenwood and I were accused by a young academic of being deeply offensive, and wrong. This was after we had all given keynote presentations at a conference challenging the status quo in dementia care, and in particualr challenging the concept of BPSD. We believed then, and I’m confident I…
Try as I might, I am currently really struggling to convince a group of global researchers on the importance of adding two simple things to a list of possible interventions following a diagnosis of dementia. It has got to the point, I feel discriminated and stigmatised by them, as most in the group generally seem…
I invite you to get involved in this important research project. Even if it is not possible to attend our focus groups in May, your participation is important. Please also feel free to share this blog, or download the flier
In my blog The impact of Betrayal Trauma, published quite recently (although it says it was posted in January), it seems to have opened up a few wounds and hearts of many others I’ve been talking to. It is especially sad to know this is such a familiar and common experience, and I go back to…
I’m sure this seems a bit unusual, but today, I want to acknowledge and recognise three women who have positively impacted my life, as well as two men! After all, without women and men, no-one would exist… We are on this planet together, after all, and although there are many women and men who have…
The quest for a more positive public narrative about those of us diagnosed with dementia, and on attitudes about the way a person and their family might choose (and be able) to live with dementia continues. Currently, living too positively with dementia, being remotely functional, and even having fun with it too often gets those…
The following is a comment posted with a re-blog of Dr Peter Gordon’s blog, which I’m also reblogging here: “Dr Peter Gordon’s saga with the Royal College of Psychiatry UK is shocking. His treatment at the hands of these ghouls is disgraceful. These emails from the Royal College display their complete and utter contempt for…
“FIVE YEARS ON: WHY DAI? WHERE HAVE WE BEEN” WHERE ARE WE GOING?” With a new diagnosis of dementia every 3 seconds, it is not surprising that DAI has continued to grow since its launch five years ago. John Sandblom and I are both presenting, and are two of the eight co-founders. We are co…
The short Vimeo I am posting below today was made by a friend and colleague in Scotland, which I found to be incredibly profound. For me, it spoke mostly about truth. But it also speaks about lies and deception, and arrogance and the lack of scrutiny. As I have become what others often tell me…
What a day. It started with a webinar I was involved in, needing me to get up at 4am. After that, and two online peer-to-peer support groups, I was interviewed again by Spence Denny (2nd time this week), to comment on the Royal Commission into Aged Care Quality and Safety. I spoke about Human Rights being…
The following article which is about a 5 year research project is truly terrifying, and only confirms my committment towards the need to Rethink Dementia and ban BPSD. It is thanks to Tina Minkowitz who is an attorney and psychiatric survivor in New York, and founded the Center for the Human Rights of Users and Survivors of Psychiatry, that…
Tracey Maxfield wrote an excellent short post some time ago now about Betrayal Trauma on her LinkedIn page, which I then shared in a short post on Facebook. It was too important and relevant to so many of us living with (and without) dementia not to start a blog about it and quote her here, It…
Hello. It has been about a week since I last posted a blog, and I decided to start the new year with one which was posted on the International Day of persons with Disabilities on December 3, 2018, on why employers should employ people with disabilities. So, I’m beginning the year here with a mataphorical…
Over the last few years, the concept of Dementia Villages, Memory Cafes, Dementia specific shopping lanes, etc. has been growing, and worse, the villages are currently being lauded as ‘best practice’, in spite of there being NO evidence for them. Just like the Dementia Friendly Community or Dementia Friends initiatives, they were developed by people…
Article 19 of the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD), focuses on the provision (and right) that all disabled people have the right to live and participate in the community. This includes people living with any type of dementia, and easily justifies why it is no longer (and never…
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