In the last few weeks, there have been a few articles, blogs or tweets on the impact of others publicly doubting a persons diagnosis of dementia, which I am highlighting here for your weekend reading! One tweet by a professional last week claimed with certainty some people don’t have dementia. Whilst it didn’t name anyone,…
Last week, I presented at an online Webinar for brainXchange, with friend and colleague, Monica Cations. I’m not so great lately at promoting events or activities here, or even writing blogs, so thought I’d make up for it today! The session was called Rehabilitation as the future of dementia care. My presentation, Dementia as a Cognitive…
Late last year, I received a few ‘top tips’ from the University of South Australia (sent to students for surviving exams), and I’ve modified them to apply them to life in general, and especially to living with dementia, or supporting someone with dementia. Feel free to add to them, suggest alternatives that may be better…
Another great blog recently by Sonya Barsness called Being Better than a Stick in the Eye. In the beginning (i.e. after my diagnosis) my husband and I too were ‘starving’, for any old stick in the eye! And in the beginning we also meekly accepted any old stick in the eye. There was so little…
It was encouraging to see a my theory of Prescribed Disengagement® being discussed in a presentation at the LASA Congress in Adelaide this week, where on Sunday I joined a Panel discussion, “Is Australia Ready for the New Era?: A Candid Discussion around what the aged care system will look like, how it will be…
A few months ago, I wrote a poem saying I wanted my old (pre-dementia) life back! I was either having a really bad day or was more sleep deprived than usual. My life is so much richer since having been diagnosed with dementia, and it has been the third greatest gift in my life. One…
It may be a long video, but I recommend viewing t it. There are some tragically stark similarities to the way people with dementia have been ‘Psychiatrized’ primarily, due to BPSD. Yet another nail in the BPSD coffin… and why we must #BanBPSD. BPSD is mostly a ‘Psychiatrization’ of normal human responses to dementia. Like…
Medicated and Motivated – NOT!!!!!! Questioning the abusive practice of chemical restraint. Guest blog by Leah Bisiani MHLthSc/DipBus/RN.1/Dementia Consultant Republished with permission as part of my Rethinking Dementia: Normal Human Responses series for World Alzheimer’s Month… #BanBPSD “Elder abuse is one of the vilest indicators of ageist discrimination within our current civilization. Whilst the concealed ignominy…
Although this is slightly off topic, and not really aligned to the #BanBPSD series I planned for September 2018, I wanted to share this blog today, and reviews about my books, one which I wrote, in essence, as an attempt to normalise dementia. In 2016, I published two books, one called “What the hell…
I really love this quote, and felt it quite relevant to this blog series about the need to #BanBPSD. Fronteirs in Neurology state: “Behavioral and psychological symptoms of dementia (BPSD), also known as neuropsychiatric symptoms, represent a heterogeneous group of non-cognitive symptoms and behaviors occurring in subjects with dementia.” Thankfully, at least in my opinion, there…
In an effort to keep the #BanBPSD series going, I want to highlight a comment written by Peter Gordon from Scotland, who has become a dear friend, and is also a psychiatrist in Scotland who has been advocating for improved practice. He advocates also for a more transparent medical industry for many years, and I will…
World Awareness Month 2018 is well underway and #DAI continues to run their daily series of #Hello my name is blogs to raise awareness of dementia and to share our members stories However, this month, I am maintaining focus on my #BanBPSD blog series. Hence, I have put together the following list! Whatever we do, whoever…
In today’s blog post, I am highlighting a piece written by Sonya Barsness, The Faces of BPSD published recently. Sonya is a gerontologist, and it says on her blog; “I am a bit of a rebel – I like to challenge thinking – and revisionist is a term that seems to capture this. A revisionist is…
Let’s STOP Pathologising Normal Human Responses For #WAM2018, and on day 3, I am continuing my series of blogs, highlighting why many other people also believe we need to BanBPSD. On June 9, 2018 Susan Macaulay wrote an open letter to members of the dementia community worldwide, highlighted below. She outlines what happened to her…
Rethinking Dementia Care by Banning BPSD For World Alzheimer’s Month this year, #WAM2018, I will be focusing on why I, and a growing number of others believe we need to Ban BPSD (the Behavioural and Psychological Symptoms of Dementia). Six people, myself included wrote a Letter to the Editor of the Australian Journal of Dementia…
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