Another great blog recently by Sonya Barsness called Being Better than a Stick in the Eye. In the beginning (i.e. after my diagnosis) my husband and I too were ‘starving’, for any old stick in the eye! And in the beginning we also meekly accepted any old stick in the eye. There was so little…
It was encouraging to see a my theory of Prescribed Disengagement® being discussed in a presentation at the LASA Congress in Adelaide this week, where on Sunday I joined a Panel discussion, “Is Australia Ready for the New Era?: A Candid Discussion around what the aged care system will look like, how it will be…
An an article published on October 2, 2018, Behavioural and psychological symptoms of dementia: GPs’ perspective on management highlighted to me on Twitter via Dubhgas Taylor, I want to highlight one of the problems we are facing. It reports on a ‘mixed-methods systematic review by Jennings and colleagues aimed to develop a better understanding of general practitioners’…
It may be a long video, but I recommend viewing t it. There are some tragically stark similarities to the way people with dementia have been ‘Psychiatrized’ primarily, due to BPSD. Yet another nail in the BPSD coffin… and why we must #BanBPSD. BPSD is mostly a ‘Psychiatrization’ of normal human responses to dementia. Like…
It is the final day of World Alzhimers Month 2018, and I decided to end the month by saying I am tired! Go figure… I helped orchestrate 30 blogs on the DAI website, as part of their campaign for this month, #Hello blog/vlog series. Please follow the link and read them, if for no other…
Although this is slightly off topic, and not really aligned to the #BanBPSD series I planned for September 2018, I wanted to share this blog today, and reviews about my books, one which I wrote, in essence, as an attempt to normalise dementia. In 2016, I published two books, one called “What the hell…
I really love this quote, and felt it quite relevant to this blog series about the need to #BanBPSD. Fronteirs in Neurology state: “Behavioral and psychological symptoms of dementia (BPSD), also known as neuropsychiatric symptoms, represent a heterogeneous group of non-cognitive symptoms and behaviors occurring in subjects with dementia.” Thankfully, at least in my opinion, there…
In my #BanBPSD for #WAM2018 blog series, I am posting a comment received after an earlier blog in this series; often it is a comments like this that motivates me to keep writing and advocating for change. My blog today is short, but hopefully makes sense. Jeff’s comments kept me awake, and in tears for…
Let’s STOP Pathologising Normal Human Responses For #WAM2018, and on day 3, I am continuing my series of blogs, highlighting why many other people also believe we need to BanBPSD. On June 9, 2018 Susan Macaulay wrote an open letter to members of the dementia community worldwide, highlighted below. She outlines what happened to her…
Rethinking Dementia Care by Banning BPSD For World Alzheimer’s Month this year, #WAM2018, I will be focusing on why I, and a growing number of others believe we need to Ban BPSD (the Behavioural and Psychological Symptoms of Dementia). Six people, myself included wrote a Letter to the Editor of the Australian Journal of Dementia…
10 Things That Happen To Your Body If You Walk Every Day What a surprise… Another article supporting why we all need to start #Walking #NotWandering #DitchTheLabels #BanBPSD Published on Aug 9, 2018, by BUGG Zodiac. “You’ll be shocked to learn what happens to your body just from walking daily. The real question is, do you…
Our first published Letter to the Editor, promoting the continuation of the campaign to ban the false construct known as BPSD (Behavioural and Psychological Symptoms of Dementia). A few years ago, Professor Dawn Brooker started a group called “GAP in Dementia Care”, which consisted of a large group of academics, dementia professionals and included people…
Please froward this to anyone you know who may be interested in being involved with this study. We have the coaches trained, but are still looking for participants living in Australia who have been diagnosed in the early stages of dementia (any age), within the last six months. Download the dementia-lifestyle-coaching flyer or the image below.…
Most Saturdays (for me), I attend a Brain health ‘motivational’ meeting to help us stay focused on being healthy and staying positive. It is hosted by two of the Board members of Dementia Alliance International., for anyone with dementia, or for someone supporting a person with dementia, worried about their own brain health or about…
At last, many people are on the same page as people with dementia, who have been asking and ultimately begging for rehabilitation and human rights for many years. I’m past caring who takes the credit, receives the kudos for this positive change, as long as it changes!!! Below is a list of just a few…
