Rethinking Dementia: 30 Normal Human Responses #6

World Awareness Month 2018 is well underway and #DAI continues to run their daily series of #Hello my name is blogs to raise awareness of dementia and to share our members stories However, this month, I am maintaining focus on my #BanBPSD blog series. Hence, I have put together the following list! Whatever we do, whoever…

Lightening the tone…

This week for my #BanBPSD #WAM2018 blog series, the focus has been on disrupting the current care system in dementia. Some of the p posts have been a bit ‘heavy’, but, there has been much health debate about it on Twitter, LinkedIn, Facebook, and also here, which is healthy, and very encouraging. To lighten the…

Rethinking Dementia: Normal Human Responses #3

There is a distinct possibility the #BanBPSD campaign may already have been misconstrued as the banning of antipsychotics completely. It was never meant to be that; we all acknowledge many people need, and do benefit from antipsychotics, or other forms of medication, when prescribed appropriately. It is the over dispensing of them, as a form of…

Rethinking Dementia: Normal Human responses #2

Let’s STOP Pathologising Normal Human Responses For #WAM2018, and on day 3, I am continuing my series of blogs, highlighting why many other people also believe we need to BanBPSD. On June 9, 2018 Susan Macaulay wrote an open letter to members of the dementia community worldwide, highlighted below. She outlines what happened to her…

Rethinking Dementia: Normal Human Responses #1

Rethinking Dementia Care by Banning BPSD For World Alzheimer’s Month this year, #WAM2018, I will be focusing on why I, and a growing number of others believe we need to Ban BPSD (the Behavioural and Psychological Symptoms of Dementia). Six people, myself included wrote a Letter to the Editor of the Australian Journal of Dementia…

Open Letter to Gabriella Rogers and Channel 9

Urgent Attention: Gabriella Rogers and 9News This letter is in response to the entitled “New Drug to Treat Behavioural Issues in Dementia Patients”, publicised on Aug.18th 2018 at 6pm. “This report misrepresents both the facts and the real-world experiences of people living with dementia.  The report positions all behaviour, moods and reactions within the frame of a dementia diagnosis…

Rethinking Dementia Care: #BanBPSD

Our first published Letter to the Editor, promoting the continuation of the campaign to ban the false construct known as BPSD (Behavioural and Psychological Symptoms of Dementia). A few years ago, Professor Dawn Brooker started a group called “GAP in Dementia Care”, which consisted of a large group of academics, dementia professionals and included people…