Another great blog recently by Sonya Barsness called Being Better than a Stick in the Eye. In the beginning (i.e. after my diagnosis) my husband and I too were ‘starving’, for any old stick in the eye! And in the beginning we also meekly accepted any old stick in the eye. There was so little…
It was encouraging to see a my theory of Prescribed Disengagement® being discussed in a presentation at the LASA Congress in Adelaide this week, where on Sunday I joined a Panel discussion, “Is Australia Ready for the New Era?: A Candid Discussion around what the aged care system will look like, how it will be…
Living by the “two ears one mouth – applied in that proportion” principle is not always easy! Sometimes that will mean listening and perhaps not speaking at all, or maybe even not joining in including walking away, if you can only say negative or hurtful things. It’s our individual responsibility to control how we treat…
Congratulations to the Australian Financial Review 100 Women of Influence (100WOI) in 2018, and to the category winners and overall winner. It is an honour to be listed amongst a group of such remarkable women. The awards are in their sixth year and were this year expanded to include an Alumni Projects program, an initiative designed…
A few months ago, I wrote a poem saying I wanted my old (pre-dementia) life back! I was either having a really bad day or was more sleep deprived than usual. My life is so much richer since having been diagnosed with dementia, and it has been the third greatest gift in my life. One…
Please read this brilliant blog by my colleague and friend, Tina Minkowitz. “When we go to a doctor’s office we may feel nervous, apprehensive. We worry about test results, we worry about whether a treatment might do more harm than good. We put our trust in the practitioner provisionally and hope she is trustworthy and competent. But…
Following on from all the wonderfully honest #DAI #Hello stories shared during World Alzheimer’s Month or Dementia Awareness Month, which is a term I prefer, as I’ve been advised many times by my neurologist I don’t have Alzheimer’s, I decided a blog updating the changes in my cognitive disabilities was in order. Sometimes the raw…
An an article published on October 2, 2018, Behavioural and psychological symptoms of dementia: GPs’ perspective on management highlighted to me on Twitter via Dubhgas Taylor, I want to highlight one of the problems we are facing. It reports on a ‘mixed-methods systematic review by Jennings and colleagues aimed to develop a better understanding of general practitioners’…
It may be a long video, but I recommend viewing t it. There are some tragically stark similarities to the way people with dementia have been ‘Psychiatrized’ primarily, due to BPSD. Yet another nail in the BPSD coffin… and why we must #BanBPSD. BPSD is mostly a ‘Psychiatrization’ of normal human responses to dementia. Like…
It is the final day of World Alzhimers Month 2018, and I decided to end the month by saying I am tired! Go figure… I helped orchestrate 30 blogs on the DAI website, as part of their campaign for this month, #Hello blog/vlog series. Please follow the link and read them, if for no other…
Medicated and Motivated – NOT!!!!!! Questioning the abusive practice of chemical restraint. Guest blog by Leah Bisiani MHLthSc/DipBus/RN.1/Dementia Consultant Republished with permission as part of my Rethinking Dementia: Normal Human Responses series for World Alzheimer’s Month… #BanBPSD “Elder abuse is one of the vilest indicators of ageist discrimination within our current civilization. Whilst the concealed ignominy…
I am extremely proud today… no more words needed!
Although the theme this month is specifically about the #BanBPSD campaign I am involved in, I needed a ‘Willie Nelson fix’ today, and wondered if anyone may as well. Dementia is not something you ‘get over’, but with the right support, it is something we can get though. Lyrics When you lose the one you…
Although this is slightly off topic, and not really aligned to the #BanBPSD series I planned for September 2018, I wanted to share this blog today, and reviews about my books, one which I wrote, in essence, as an attempt to normalise dementia. In 2016, I published two books, one called “What the hell…
I really love this quote, and felt it quite relevant to this blog series about the need to #BanBPSD. Fronteirs in Neurology state: “Behavioral and psychological symptoms of dementia (BPSD), also known as neuropsychiatric symptoms, represent a heterogeneous group of non-cognitive symptoms and behaviors occurring in subjects with dementia.” Thankfully, at least in my opinion, there…
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