Over the last few years, the concept of Dementia Villages, Memory Cafes, Dementia specific shopping lanes, etc. has been growing, and worse, the villages are currently being lauded as ‘best practice’, in spite of there being NO evidence for them. Just like the Dementia Friendly Community or Dementia Friends initiatives, they were developed by people…
Article 19 of the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD), focuses on the provision (and right) that all disabled people have the right to live and participate in the community. This includes people living with any type of dementia, and easily justifies why it is no longer (and never…
Following on from yesterdays blog, I am today highlighting a very important and relevant Dementia Alliance International (DAI Webinar that is on later this week. Our presenter is Associate Professor Lee-Fay Low from Sydney University, presenting Rehabilitation for dementia: Evidence & Opportunities. It is one event, set in different time zones. See below for the times and register…
Last week, I presented at an online Webinar for brainXchange, with friend and colleague, Monica Cations. I’m not so great lately at promoting events or activities here, or even writing blogs, so thought I’d make up for it today! The session was called Rehabilitation as the future of dementia care. My presentation, Dementia as a Cognitive…
In a blog published on 19 October 2018 on the site, strategy+business, There’s No Such Thing as Difficult People, written by Adam Kahane, there is a strong suggestion this is true. I took a screen shot from the site of Adam to use here, which has some information about who he is, and refers to…
Late last year, I received a few ‘top tips’ from the University of South Australia (sent to students for surviving exams), and I’ve modified them to apply them to life in general, and especially to living with dementia, or supporting someone with dementia. Feel free to add to them, suggest alternatives that may be better…
Another great blog recently by Sonya Barsness called Being Better than a Stick in the Eye. In the beginning (i.e. after my diagnosis) my husband and I too were ‘starving’, for any old stick in the eye! And in the beginning we also meekly accepted any old stick in the eye. There was so little…
It was encouraging to see a my theory of Prescribed Disengagement® being discussed in a presentation at the LASA Congress in Adelaide this week, where on Sunday I joined a Panel discussion, “Is Australia Ready for the New Era?: A Candid Discussion around what the aged care system will look like, how it will be…
Following on from all the wonderfully honest #DAI #Hello stories shared during World Alzheimer’s Month or Dementia Awareness Month, which is a term I prefer, as I’ve been advised many times by my neurologist I don’t have Alzheimer’s, I decided a blog updating the changes in my cognitive disabilities was in order. Sometimes the raw…
An an article published on October 2, 2018, Behavioural and psychological symptoms of dementia: GPs’ perspective on management highlighted to me on Twitter via Dubhgas Taylor, I want to highlight one of the problems we are facing. It reports on a ‘mixed-methods systematic review by Jennings and colleagues aimed to develop a better understanding of general practitioners’…
It may be a long video, but I recommend viewing t it. There are some tragically stark similarities to the way people with dementia have been ‘Psychiatrized’ primarily, due to BPSD. Yet another nail in the BPSD coffin… and why we must #BanBPSD. BPSD is mostly a ‘Psychiatrization’ of normal human responses to dementia. Like…
It is the final day of World Alzhimers Month 2018, and I decided to end the month by saying I am tired! Go figure… I helped orchestrate 30 blogs on the DAI website, as part of their campaign for this month, #Hello blog/vlog series. Please follow the link and read them, if for no other…
Medicated and Motivated – NOT!!!!!! Questioning the abusive practice of chemical restraint. Guest blog by Leah Bisiani MHLthSc/DipBus/RN.1/Dementia Consultant Republished with permission as part of my Rethinking Dementia: Normal Human Responses series for World Alzheimer’s Month… #BanBPSD “Elder abuse is one of the vilest indicators of ageist discrimination within our current civilization. Whilst the concealed ignominy…
I am extremely proud today… no more words needed!
Although the theme this month is specifically about the #BanBPSD campaign I am involved in, I needed a ‘Willie Nelson fix’ today, and wondered if anyone may as well. Dementia is not something you ‘get over’, but with the right support, it is something we can get though. Lyrics When you lose the one you…
You must be logged in to post a comment.