Although this is slightly off topic, and not really aligned to the #BanBPSD series I planned for September 2018, I wanted to share this blog today, and reviews about my books, one which I wrote, in essence, as an attempt to normalise dementia. In 2016, I published two books, one called “What the hell…
I really love this quote, and felt it quite relevant to this blog series about the need to #BanBPSD. Fronteirs in Neurology state: “Behavioral and psychological symptoms of dementia (BPSD), also known as neuropsychiatric symptoms, represent a heterogeneous group of non-cognitive symptoms and behaviors occurring in subjects with dementia.” Thankfully, at least in my opinion, there…
In an effort to keep the #BanBPSD series going, I want to highlight a comment written by Peter Gordon from Scotland, who has become a dear friend, and is also a psychiatrist in Scotland who has been advocating for improved practice. He advocates also for a more transparent medical industry for many years, and I will…
World Awareness Month 2018 is well underway and #DAI continues to run their daily series of #Hello my name is blogs to raise awareness of dementia and to share our members stories However, this month, I am maintaining focus on my #BanBPSD blog series. Hence, I have put together the following list! Whatever we do, whoever…
In my #BanBPSD for #WAM2018 blog series, I am posting a comment received after an earlier blog in this series; often it is a comments like this that motivates me to keep writing and advocating for change. My blog today is short, but hopefully makes sense. Jeff’s comments kept me awake, and in tears for…
This may seem a radical statement, but I sincerely believe it. It is time everyone, especially the health care professionals and educators still so heavily invested in BPSD think more deeply about it. We must find new ways to teach dementia care that better serves the client – to live more positively, and which is free of…
Let’s STOP Pathologising Normal Human Responses For #WAM2018, and on day 3, I am continuing my series of blogs, highlighting why many other people also believe we need to BanBPSD. On June 9, 2018 Susan Macaulay wrote an open letter to members of the dementia community worldwide, highlighted below. She outlines what happened to her…
Rethinking Dementia Care by Banning BPSD For World Alzheimer’s Month this year, #WAM2018, I will be focusing on why I, and a growing number of others believe we need to Ban BPSD (the Behavioural and Psychological Symptoms of Dementia). Six people, myself included wrote a Letter to the Editor of the Australian Journal of Dementia…
10 Things That Happen To Your Body If You Walk Every Day What a surprise… Another article supporting why we all need to start #Walking #NotWandering #DitchTheLabels #BanBPSD Published on Aug 9, 2018, by BUGG Zodiac. “You’ll be shocked to learn what happens to your body just from walking daily. The real question is, do you…
Our first published Letter to the Editor, promoting the continuation of the campaign to ban the false construct known as BPSD (Behavioural and Psychological Symptoms of Dementia). A few years ago, Professor Dawn Brooker started a group called “GAP in Dementia Care”, which consisted of a large group of academics, dementia professionals and included people…
Please froward this to anyone you know who may be interested in being involved with this study. We have the coaches trained, but are still looking for participants living in Australia who have been diagnosed in the early stages of dementia (any age), within the last six months. Download the dementia-lifestyle-coaching flyer or the image below.…
In my collaborative #BanBPSD campaign, today I’d like to talk about wandering. This term, along with ALL of the other negative labels in the BPSD guidelines, must become part of the list of words NOT to use in dementia language guidelines. My lovely BUB found and bought this lapel badge for me recently… I’d really…
A diagnosis of dementia The ultimate and final weed-killer More sure to work than Round Up And although environmentally friendly Definitely not humanity friendly With an open heart And a willingness to overcome the loss One is left with only honest and loyal family friends And a global ‘dementia family’ Making dementia Possibly the greatest…
Thanks to Tracey Maxfield for this quote. These are probably the exact same reasons people with dementia appear upset or ‘ANGRY’! Except, they get blamed for it, the pathology of their dementia is seen as the root cause, hence they get restrained, physically or chemically, for their so-called BPSD!!! Hence our #BanBPSD campaign… My only modification…
I’ve been a reader of Kahlil Gibran for most of my life, and his book, The Prophet is my favourite. Last night, I had my very foundations of my soul and heart shaken to the core, after receiving an email from someone I thought to be a true friend and remarkable dementia advocate, suggesting the work…
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