The last few weeks I had been feeling quite stressed about having too many things to do, and especially about the truly desperate state of my office and email ‘situation’. I can no longer file things, as the acquired dyslexia is much worse, and therefore, if I do, I can never find anything afterwards. The…
This blog has been sitting in the drafts folder since December last year… and for some reason, today seems the right day to publish it. As tired as I am, and as so many others also are, and regardless of the progression of dementia, we must not give up, nor give in because of people who…
Below are some screen shots of some positive comments via email and twitter following an article I co authored with my dear friend and colleague Shibley Rahman. If I was able to, I would have embedded the twitter comments, but alas, even after quite a few attempts, I gave up! So far, we have only…
I’ve been working on this article since before May 2017, but wanting to get it published as a response to the WHO The Global Plan of Action on the Public Health Response to Dementia 2017-2025 (Global Dementia Action Plan). This plan was unanimously adopted at the World Health Assembly in Geneva in May 2017, and…
The following video was published on YouTube by Human Rights Watch on February 5, 2018. Thanks to Susan MacCauley and Jason Burton from Alzheimer’s WA for highlighting it. Jason posted on LinkedIn: “Great new short video released to coincide with the Human Rights Report into misuse of antipsychotic medication in dementia care in USA. Hard…
Social media brings with it a lot of benefits for those who feel isolated, or simply want to feel part of an online community, but it also brings with it, a lot of unkindness. Too many people write things they would probably never say to your face, and the evidence for kindness is…
If people would proactively and positively support us to do so, and stop telling us all to go home and prepare to die, via aged care, living with dementia can be far more positive than I ever expected. I was interviewed in Singapore last year when support the Singapore Alzheimer’s Disease Association in an article in…
Thanks Ness… a wonderful reminder, and perfect timing xx
It feels like I have a dose of Post Traumatic Stress Disorder (PTSD) today. Most will know that PTSD can develop after a person is exposed to a traumatic event such as an assault, and after yesterday, this is where I’ve landed, even though I can still type, which according to a dear friend, I’ll still be…
At the time, finding meaning in hostility publicly directed to you, at someone you love or towards something you represent, is not easy. Add in a diagnosis of dementia, and it is almost impossible, and seriously impacts ones ability to ‘paddle‘. In my case this also impacts the ability to speak as the PPA component…
Perhaps it is a great idea, but surely, labelling where we live, shop or eat and have coffee by our disease or condition, is simply another form of keeping the myths alive, as well as ensuring a continued sense of ‘otherness’. It is definitely another form of segregation. And yet, the emergence of Dementia Villages, or…
Thanks to a special friend Valerie Schache for leading me to this video. It is exactly what I needed to see today! As always, every day, every moment, every unexpected gift is perfect. Being courageous, respectful, honest, loyal and facing up to everything, including the negative things that happen to you, does take a little…
During the night, the world lost an incredible human being and dementia advocate. Personally, I lost a very dear friend, and I have no doubt her family and closer friends will be even more devastated than we are in my house. Susan was one of my heroes, and I will miss her presence in life…
If you read the latest academic or other dementia Journals, you may have seen two articles available for loan in Sydney, and of interest to anyone in the dementia space. Professor Henry Brodarty (psychogeriatrician) has created a DVD titled Antipsychotics and dementia : managing medications, where he, Dr Julian Pierre (GP) and Tim Perry (consultant pharmacist) discuss…
Following on from my last blog, I thought I’d share more on how dementia has changed my life, in particular how it has mostly been for the better. For instance, the image here of Snowy (TinTins dog) is a gift that was selected by Francis Wong, a wonderful colleague and now someone I am very…
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