It is normal for some relationships to deteriorate into power struggles over who is right and who is wrong, but it does not seem so okay when it is power struggles and egos of people without dementia who don’t appear to want people with dementia to stand on their own two feet. In my thinking…
Yearning for university Almost from my first day at school Nursing came long instead Long before that became a degree Like an escape And still no university for me And in spite of this Many other things were achieved and accomplished Life now with dementia, and Incredibly, university has become part of my life At least for…
There has been an ongoing debate in the dementia community about language, now for many years, and even though there are ‘dementia language guidelines’, I have regularly been told by researchers, universities, service providers and others without dementia, “but we don’t have to use them, they are after all, only guidelines!” Family care partners often…
Jessica Kingsley Publishers in the UK sent me a few questions to answer about what is was like when first diagnosed with dementia, how dementia has impacted my life and family, and on living beyond dementia, continuing to study and much more… you can hear my response here. My book “What the hell happened to…
There was a time when my house was immaculate, the pillowslips AND the sheets were ironed, and in fact, ironing as a topic here has been a bit hit in the past! Everything in the cupboards were aligned, all clothing in the wardrobe and drawers were ironed perfectly and in neat piles, or hanging with matching coat…
Well, today is actually the day! My book on living beyond dementia is officially released, although, as yet I have not even seen a copy; it is only a very few lucky people in the UK have actually seen it. So, when (if) I get a copy, I’ll take a photo and add it here! It’s been…
Write for between 10 minutes – 5 hours Every single day Bar for one regular day off each week The time you choose only depicts one thing How long it will take you to write a book Turn it into an online blog A blog, with followers is what keeps you writing It makes it a…
It may not be true everywhere in the world just now, but here in Australia where I live, the sun is almost always shining, even in winter. It may be too hot some of the time, but the beauty and radiance of our clear blue skies and sunshine always helps one to feel like getting out of bed…
I sat and cried for a while… I cried for those people who I miss and still love who have left this world I cried for the babies I lost in utero I cried for my friends who have lost people they loved I cried for having dementia I cried for all the other people with dementia…
Today is one of those days I feel like hiding under the blankets all day, although where I live, that would be a tad warm as it’s very hot here this summer! Anyway, I suspect, sweat droplets would take over from tear droplets eventually and it will all be ok! But it doesn’t feel ok just…
Apart from the thrill of finding out one of my blogs titled The Power of Language was the top resource for Cosmopolita Scotland late last year, I remain confused that people find it so challenging to respect the wish of many, not to PUBLICLY refer to people with dementia as sufferers. Yes, I am happy about this……
On January 21st, 8pm in Australia, 9.30am in the UK, mid afternoon in the USA, I will be holding a Q & A on Twitter for its release. Yes, it will be out that day… I think I am as nervous as I am excited! Jessica Kingsley Publishers (JKP), who are publishing my book will be online as well.…
Needing a reminder today… I must get back to ‘real’ blogging very soon!
Writing a book, speaking out about living with dementia and blogging prevents denial… but it is also very healing. We all have stories, and many of them actually need to be told. The stories that remain hidden, often go on to hurt…
To be discussed in more detail in my soon to be released book, What the hell happened to my brain?: Living beyond dementia.
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