Virtual dementia reality: whose reality is it?

Ok, so maybe I’ve got it wrong (again or still!), but surely focusing on what people without dementia think dementia might be like and spending vast amounts of money on virtual reality products to show more people without dementia what it is like for us seems a little off base to me. One or two…

ePAT Pain assessment App

Yesterday I received an email from the University of Wollongong with the following media release about the ePAT App has now received regulatory clearance in Australia and for the European Economic Area (EAA). Below is the announcement that was placed on the ASX yesterday. As one of more than 50 million people living with dementia…

NDIS update (for Australia)

Following yesterdays SA update, here is a brief national update from ProBono Australia who reported on the NDIS late last week, written by Rachel McFadden (29 July 2017); NDIS Having a Life Changing Impact Despite First Year ‘Teething Problems’  On the eve of the first anniversary of the Australia-wide rollout of the National Disability Insurance Scheme…

“Diagnosed with Alzheimer’s or another dementia” – available now online

My second dementia book, Diagnosed with Alzheimer’s or another dementia, co authored with my friend and colleague Associate Professor Lee-Fay Low was released recently as an e-book through the Apple iBooks Store which you can find here… The following is the Foreword written by Professor Henry Brodarty: “Dementia is never one person’s illness. Its ripples spread wide, enveloping…

The real tragedy of dementia

The last few months have been a very difficult time for me; physically, emotionally and also in terms of managing the disabilities of dementia, and due to this it has been very necessary for me to get support to proactively manage the stress. Since February, I have also consciously kept myself much busier than usual to avoid thinking…

“I’ve changed my mind” by George Rook

Chris Roberts posted a blog by George Rook, and both of these men live as well as is humanly possible, with a diagnosis of dementia. Thanks Chris for reminding me via the post on your site, to post it here. George Rook, thank you for writing “I’ve changed my mind”. It is a wonderful blog, and saves…

100 Women of Influence 2016

Newsflash: I am truly thrilled to be able to announce that yesterday I was listed in the 2016 list of 100 Women of Influence in Australia, in the SOCIAL ENTERPRISE & NOT-FOR-PROFIT category. The category winners and overall winner will be announced during an event to be held in the Sydney Town Hall on 27 October 2016. So many are…

What is dementia? Part 2

There is no time today to write a blog, or for anything other than adding this graphic, which is also from our book, Diagnosed with Alzheimer’s or another dementia released last week. Like the umbrella graphic from a couple of days ago, this does not outline every single symptom, but is an overview of what to expect…