S4D and Disability Webinar 1: This webinar (1 of 6) was hosted by inFocus in April 2018 and explored what is an inclusive activity in relation to S4D and disability programmes around the world. I thought many of you might also be interested in it. As the dementia community is now very globally focused on CRPD and…
These days, ‘Wally’ can be anywhere, and by Wally, I mean things like my files or a book, or my jewellery! My belongings seem to have developed identities of their own, and have even become quite mobile, as more often, I cannot find my ‘things’ anywhere! Thankfully, my phone can be found by some clever…
I’ve been working on this article since before May 2017, but wanting to get it published as a response to the WHO The Global Plan of Action on the Public Health Response to Dementia 2017-2025 (Global Dementia Action Plan). This plan was unanimously adopted at the World Health Assembly in Geneva in May 2017, and…
If people would proactively and positively support us to do so, and stop telling us all to go home and prepare to die, via aged care, living with dementia can be far more positive than I ever expected. I was interviewed in Singapore last year when support the Singapore Alzheimer’s Disease Association in an article in…
At the time, finding meaning in hostility publicly directed to you, at someone you love or towards something you represent, is not easy. Add in a diagnosis of dementia, and it is almost impossible, and seriously impacts ones ability to ‘paddle‘. In my case this also impacts the ability to speak as the PPA component…
Farewell 2017: the highs & lows As we come to the end of another busy year, I’ve been pondering on how things have changed over the last few years, and especially in 2017. Today is also the last day of my role as the SA 2017 Australian Of The Year, and whilst it should have…
In the last few days, someone asked me for this list/graphic of a power point slide I have of it, but I cannot find my notes, nor remember who, hence I am reposting it here today. Please feel free to download it and share it, but also reference it to me. Thanks. And I hope…
Ok, so maybe I’ve got it wrong (again or still!), but surely focusing on what people without dementia think dementia might be like and spending vast amounts of money on virtual reality products to show more people without dementia what it is like for us seems a little off base to me. One or two…
Over the voting period of my life, I’ve been a political swinger, and the last couple of years, had actually become a political atheist, even joining the Facebook group of that name! In my home state, I have now decided to support Dignity Party SA, and will write occasionally about why I have decided to…
Yesterday I received an email from the University of Wollongong with the following media release about the ePAT App has now received regulatory clearance in Australia and for the European Economic Area (EAA). Below is the announcement that was placed on the ASX yesterday. As one of more than 50 million people living with dementia…
Following yesterdays SA update, here is a brief national update from ProBono Australia who reported on the NDIS late last week, written by Rachel McFadden (29 July 2017); NDIS Having a Life Changing Impact Despite First Year ‘Teething Problems’ On the eve of the first anniversary of the Australia-wide rollout of the National Disability Insurance Scheme…
This week, I thought I’d begin with news about the NDIS in South Australia, partly because it was celebrated by many of us with the Dignity Party SA on the weekend, with a giant NDIS celebration cake (gluten free, although definitely not sugar free), as pictured here! The media release was sent out Friday about it,…
My second dementia book, Diagnosed with Alzheimer’s or another dementia, co authored with my friend and colleague Associate Professor Lee-Fay Low was released recently as an e-book through the Apple iBooks Store which you can find here… The following is the Foreword written by Professor Henry Brodarty: “Dementia is never one person’s illness. Its ripples spread wide, enveloping…
The last few months have been a very difficult time for me; physically, emotionally and also in terms of managing the disabilities of dementia, and due to this it has been very necessary for me to get support to proactively manage the stress. Since February, I have also consciously kept myself much busier than usual to avoid thinking…
Chris Roberts posted a blog by George Rook, and both of these men live as well as is humanly possible, with a diagnosis of dementia. Thanks Chris for reminding me via the post on your site, to post it here. George Rook, thank you for writing “I’ve changed my mind”. It is a wonderful blog, and saves…
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