Almost lost…
No amount of pondering Will ever help me find the words For the malicious unkindness of a few others… Nor the incredible gratefulness For the love of so very many Truly ‘close friends and family’. Thank you.
Australian Of The Year, South Australia
It was an honour to win the esteemed Australian of The Year Award in SA for 2017, and to now be representing South Australia in January 2017. As a finalist last year, it was more than amazing to be nominated again, and even more incredible to not only be a finalist again this year, but to…
100 Women of Influence 2016
Newsflash: I am truly thrilled to be able to announce that yesterday I was listed in the 2016 list of 100 Women of Influence in Australia, in the SOCIAL ENTERPRISE & NOT-FOR-PROFIT category. The category winners and overall winner will be announced during an event to be held in the Sydney Town Hall on 27 October 2016. So many are…
What is dementia? Part 2
There is no time today to write a blog, or for anything other than adding this graphic, which is also from our book, Diagnosed with Alzheimer’s or another dementia released last week. Like the umbrella graphic from a couple of days ago, this does not outline every single symptom, but is an overview of what to expect…
Going out on a limb…
I’ve been trying to post more regular boots for World Alzheimer’s Month 2016, and felt it appropriate today to would share one that may be mildly contentious. If it is something I believe needs to be said, then one way or another, I usually get around to saying it; I thought I’d take a risk just for Friday, which is often referred…
Coming soon: “Diagnosed with Alzheimer’s or another dementia”
Well… coming, but perhaps not soon enough! We were promised this would be ready for Dementia Awareness Month, and yes, I suppose it will we, but not until the 15th at least , so disappointing not to be able to tell you it is available now when we are four days into the month. Even the websites…
On dementia, disAbility and writing my book
Jessica Kingsley Publishers in the UK sent me a few questions to answer about what is was like when first diagnosed with dementia, how dementia has impacted my life and family, and on living beyond dementia, continuing to study and much more… you can hear my response here. My book “What the hell happened to…
When having dementia gets too hard
Today is one of those days I feel like hiding under the blankets all day, although where I live, that would be a tad warm as it’s very hot here this summer! Anyway, I suspect, sweat droplets would take over from tear droplets eventually and it will all be ok! But it doesn’t feel ok just…
Happy… and confused
Apart from the thrill of finding out one of my blogs titled The Power of Language was the top resource for Cosmopolita Scotland late last year, I remain confused that people find it so challenging to respect the wish of many, not to PUBLICLY refer to people with dementia as sufferers. Yes, I am happy about this……
Twitter Q & A – January 21st
On January 21st, 8pm in Australia, 9.30am in the UK, mid afternoon in the USA, I will be holding a Q & A on Twitter for its release. Yes, it will be out that day… I think I am as nervous as I am excited! Jessica Kingsley Publishers (JKP), who are publishing my book will be online as well.…
A Christmas wish…
Yes, I am suffering… but only some of the time not every moment of every day And, importantly… not always from dementia more often from the language of dementia The symptoms of dementia do not consume me one hundred percent of the time Only some moments of some days and definitely not all days So why then must others…
UN CRPD: Article 5 – Equality and non-discrimination
This particular Article of the UN CRPD sounds so simple, and yet, in reality, it is not happening for many people with any form of disAbilities, but even less so for people with dementia as we have not even been recognised as having the same rights (yet!!). In my own experience, I was not afforded,…
UN CRPD: Article 30
It seems my focus on our basic human rights, and disAbility rights, is keeping me focussed on the UN CRPD this week, and I suspect this is where I needed to be about six years ago when I first started speaking out as an advocate… better late than never! 🙂 Seeing the person, not the dementia or…
UN CRPD: Article 12 – Equal recognition before the law
Following on from yesterday, the International Day of Persons with disAbilities, and the theme of human rights and disAbility rights, I am today highlighting another Article of the United Nations Convention of the Rights of Persons with DisAbilities (CRPD). I have been advocating for almost as long as I have had a dementia, that we have…
International Day of Persons with disAbilities 2015
Theme for International Day of Persons with disAbilities 2015 Inclusion matters: access and empowerment for people of all abilities Today it is the International Day of Persons with disAbilities, and one of the sub themes this year is people with invisible disAbilities, which therefore includes people with dementia. Being recognised last week, in the National disAbility…
You must be logged in to post a comment.