This report is the 2022 Assistive Technology Report released by the WHO and UNICEF. CBM International also contibuted to this report. Some major points highlighted by the WHO include: Almost one billion children and adults with disabilities and older persons in need of assistive technology are denied access. Let’s not forget this figure includes more…
Life is most certainly an interesting ride and always one where perspective is helpful, which I have gained much more than I bargined for lately! For the last almost 14 years, I’ve increasingly felt like I’ve been at war. In contrast to what’s happening in the Ukraine, clearly I’m not. But I witnessed something today…
In 2022, women are still worse off than men, so for #IWD2022 I am sharing a personal blog, as well as two important events. Scroll below for the details of the two events: 1) deinstitutionalization, and 2) ageing with rights. Apart from the reality that dementia affects more women and girls than men and boys,…
It has been many years since I trademarked my term, Prescribed Disengagement®, yet, there are still many people without dementia who continue with the 20th Century view and management of dementia. My medical specialist (a registered, experienced neurologist specialising in dementia and migraines) advised me after the initial diagnosis that there was “no treatment for…
Please consider registering to attend this important event; even if the time does not work for you, once registered, you will then receive the link to the recording afterwards. You are also invited to share it amongst your professional and other networks. As you know if you follow me here, my focus is on improving…
The Global Disability Summit 2022 is on soon, and includes many side events, and I’m sure people on my side of the world will be interested in this one, especially people with dementia who live with multiple disabilities and are currently most often being denied their rights and access to the CRPD. It really is…
Normal human responses to the C0VID-19 pandemic, without any doubt, contest the construct known as the Behavioural and Psychological Symptoms of Dementia (BPSD). Many ‘dementia experts’ also refer to this as challenging behaviours, responsive behaviours, or unmet needs. I do not believe any of these terms are appropriate. BPSD is an umbrella term applied to…
My dear late aunt who I miss every minute of every day taught me not to hate anything, but I have taken that to mean people today, not ‘cognitive capacity’ because… I hate not being able to spell any more (I used to get 99.5-100% in spelling tests) I hate not understanding words, and every…
Whilst I was proud to receive a University of South Australia Alumni Award recently, I still always wonder why. The inceasing level of activism, and the voluntary work and research (sometimes even paid!) that I have been doing since being diagnosed with a rare young onset dementia 13 years ago, and since co-founding Dementia Allaince…
I was recently interviewed on The Alex Tremble Show which focuses on helping leaders increase their influence, grow their networks, and reach their career goals. This interview was a lot of fun and allowed me to share some of the best career advancement and leadership advice I have learned over the years. It was also…
Thank you Brené Brown, for this timely reminder that it’s not just ok to stand up for what we believe in, to say the unsaid, it’s worth doing even if we are alone. It is sometimes lonely daring to bring light to stuff that’s been pushed into or kept in the shadows, especially when the…
It is September, which in the world of dementia advocacy, is referred to as World Alzheimer’s Month or Dementia Awareness Month (DAM), or even World Dementia Month. This name change has come about, to ensure inclusion of those who do not have a diagnosis of Alzheimer’s disease, but some other kind of dementia. It is…
By highlighting dementia as one of the many health conditions causing disabilities, I am joining the more than 1 billion people with disability campaigning for change! It is your chance to make history; to help make a lasting change for 1 billion persons with disabilities worldwide, and I invite you to join the #WeThe15 campaign.…
If you are worried about getting a diagnosis of dementia, support somone with dementia, work in the field, or have been diagnosed with dementia, you will have seen the recent news on June 7, about the drug that the US Food and Drug Administration ushered in as a revolution for treating Alzheimer’s disease: approving aducanumab…
In a recent article I read on MamaMia about a young woman having to prove her disabilities, I was struck by the similarity to my experience, and that of many others, of having to prove we have dementia. “In just over the past month, Rhiannon has received two parking fines. The first of which she…
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