I really love this quote, and felt it quite relevant to this blog series about the need to #BanBPSD. Fronteirs in Neurology state: “Behavioral and psychological symptoms of dementia (BPSD), also known as neuropsychiatric symptoms, represent a heterogeneous group of non-cognitive symptoms and behaviors occurring in subjects with dementia.” Thankfully, at least in my opinion, there…
In my #BanBPSD for #WAM2018 blog series, I am posting a comment received after an earlier blog in this series; often it is a comments like this that motivates me to keep writing and advocating for change. My blog today is short, but hopefully makes sense. Jeff’s comments kept me awake, and in tears for…
Let’s STOP Pathologising Normal Human Responses For #WAM2018, and on day 3, I am continuing my series of blogs, highlighting why many other people also believe we need to BanBPSD. On June 9, 2018 Susan Macaulay wrote an open letter to members of the dementia community worldwide, highlighted below. She outlines what happened to her…
Rethinking Dementia Care by Banning BPSD For World Alzheimer’s Month this year, #WAM2018, I will be focusing on why I, and a growing number of others believe we need to Ban BPSD (the Behavioural and Psychological Symptoms of Dementia). Six people, myself included wrote a Letter to the Editor of the Australian Journal of Dementia…
10 Things That Happen To Your Body If You Walk Every Day What a surprise… Another article supporting why we all need to start #Walking #NotWandering #DitchTheLabels #BanBPSD Published on Aug 9, 2018, by BUGG Zodiac. “You’ll be shocked to learn what happens to your body just from walking daily. The real question is, do you…
Our first published Letter to the Editor, promoting the continuation of the campaign to ban the false construct known as BPSD (Behavioural and Psychological Symptoms of Dementia). A few years ago, Professor Dawn Brooker started a group called “GAP in Dementia Care”, which consisted of a large group of academics, dementia professionals and included people…
Please froward this to anyone you know who may be interested in being involved with this study. We have the coaches trained, but are still looking for participants living in Australia who have been diagnosed in the early stages of dementia (any age), within the last six months. Download the dementia-lifestyle-coaching flyer or the image below.…
Most Saturdays (for me), I attend a Brain health ‘motivational’ meeting to help us stay focused on being healthy and staying positive. It is hosted by two of the Board members of Dementia Alliance International., for anyone with dementia, or for someone supporting a person with dementia, worried about their own brain health or about…
At last, many people are on the same page as people with dementia, who have been asking and ultimately begging for rehabilitation and human rights for many years. I’m past caring who takes the credit, receives the kudos for this positive change, as long as it changes!!! Below is a list of just a few…
Having been nicknamed Smiley as a young school girl, I can attest to the power of optimism. I found this quote in an airline magazine recently, but forgot to write down who it comes from! Maybe Meryl Streep, but I’m not 100% sure! Anyway, it resonated with me deeply, as I have been innately optimistic…
I’ve been researching inclusion, accessibility and friendly, along with a number of terms regularly used within the dementia sector. One of the reasons is because of the ‘lightbulb’ moment I had last week, during an email discussion with people from a number of countries, where they no longer use the word dementia. In fact, they have…
This video, which was produced by ADA Australia and their media team, is very relevant to the Seventy First World Health Assembly I am attending this week, and the National Dementia Conference I attended in Canada last week. I thank them for their permission to publish it on my YouTube Channel. (ps a shocking ‘first image’…
A few weeks ago I was interviewed for an article in OX Magazine UK. One question from the journalist who interviewed was particularly interested in my thoughts about the renaming of Dementia Awareness Week in the UK, which commences next week, where it is transformed into Dementia Action Week. Below is an excerpt from the…
I’ve written a lot about the benefits of walking, and why we need to stop negatively labelling it as wandering, when it is a person with dementia who is walking! The following infographic is an excellent simple outline of why we should all be walking more, and every day, which I found on Facebook. The…
If it is within your reach financially to donate to Dementia Alliance International to assist us with funds to support as many people with dementia and their care partners as possible to be able to attend the ADI Conference in Chicago, I would personally really appreciate it. Many of my friends have already donated to…
You must be logged in to post a comment.