Dementia Awareness Month 2017

Most years, I am more than frenetic throughout September, ensuring Dementia Alliance International (DAI) has blog content to post for every day of World Alzheimer’s Month also know as Dementia Awareness Month, and blog content to post here every day. For all sorts of reasons, including health, that has not been possible. I have certainly been wondering,…

Virtual dementia reality: whose reality is it?

Ok, so maybe I’ve got it wrong (again or still!), but surely focusing on what people without dementia think dementia might be like and spending vast amounts of money on virtual reality products to show more people without dementia what it is like for us seems a little off base to me. One or two…

Not for your bucket list!

Ok, I’ve been a bit quieter than usual lately here, but I have had reason to be. On Monday of last week in the early evening, I missed the top step of our stairs at home, pictured here. Although I usually use a walking stick, or hold the hand rails when I am out, often…

Marriage equality: a human rights issue

Firstly, thanks to @ML_Leaver for permission to use this image, and well done for the great hair colour supporting the gay marriage campaign by the team at Rock Retro Scissors in Adelaide! Prior to being diagnosed with dementia, I understood intellectually that some groups in our community were disadvantaged, and being treated unfairly, being discriminated and…

We all have bills to pay…

I’m often asked for a various lengths of my bio and this is one version I gave recently: Kate Swaffer is a published academic and author, an international speaker, an activist, and a dementia and aged care consultant; she is a retired nurse, has a Masters of Science in Dementia (Distinction, 2014), and is a…

Alone in a crowd (#2)

Alone Crowded in by people Many of whom seem not to care Most who barely know me Too much noise Too many strange voices Too many different conversations Too many distractions Not able to keep up The beginning of confabulation Just to save face And maintain dignity   Kate Swaffer © 2017

Sharing our own reality

Our memories are often not reality, but rather what we have heard, or what we want to remember, and for those of us losing our memories, then our reality can change dramatically. For someone without dementia trying to understand our new reality, especially when it can change at any moment in time, must be one…

Is it fair for everyone to be paid for their expertise?

Whilst this blog is not exactly a discussion on the new narrative of dementia, which is my current my #hottopic, this YouTube video sent to me by The Amazing Susan and makes it reasonably clear what I mean… and although it gave me a good laugh, it hits home exactly about what has been annoying…

Ok, who’s hiding my glasses?

It’s been an early start today With a fun DAI members meeting and cafe But as is often the case these days A lot more things are hiding. Curiously, I’ve just discovered I had put the dirty clothes Into the kitchen bin And I still cannot find my multi focal glasses. They have obviously gone…