The last few weeks I’ve been watching on the sidelines as numerous people with dementia have been abandoned, and even abused by their families or a partner. It’s truly disturbing to watch, and I fully understand the pain and impact of this on worsening a persons dementia symptoms, as have had it happen to me.…
Hello. It has been about a week since I last posted a blog, and I decided to start the new year with one which was posted on the International Day of persons with Disabilities on December 3, 2018, on why employers should employ people with disabilities. So, I’m beginning the year here with a mataphorical…
As 2018 comes to an end, I do wonder what’s in store for us all in 2019. Most of all, I thank everyone who reads my blog, or who is working to improve the lives of people with dementia and our families and friends. I really wish for more kindness, more tolerance and more acceptance…
Over the last few years, the concept of Dementia Villages, Memory Cafes, Dementia specific shopping lanes, etc. has been growing, and worse, the villages are currently being lauded as ‘best practice’, in spite of there being NO evidence for them. Just like the Dementia Friendly Community or Dementia Friends initiatives, they were developed by people…
Article 19 of the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD), focuses on the provision (and right) that all disabled people have the right to live and participate in the community. This includes people living with any type of dementia, and easily justifies why it is no longer (and never…
In an article titled, Faking Medical Reality, (as opposed to faking dementia) by John Rappoport on a website called The PPJ Gazette, John covers the issues of “when mainstream advocates attack so-called alternative or natural health, they tend to mention that their own sacred profession is based on real science, on studies, on clinical trials.” One…
A friend and colleague, Dr Peter Gordon tendered his resignation as a medical doctor this week. As a fellow Spartan, I felt very sad, but I also strangely triumphant (for him) about his decision, as the rationale for his resignation is truly noble. To have the honour of knowing another person willing to stand up…
In the last few weeks, there have been a few articles, blogs or tweets on the impact of others publicly doubting a persons diagnosis of dementia, which I am highlighting here for your weekend reading! One tweet by a professional last week claimed with certainty some people don’t have dementia. Whilst it didn’t name anyone,…
Following on from yesterdays blog, I am today highlighting a very important and relevant Dementia Alliance International (DAI Webinar that is on later this week. Our presenter is Associate Professor Lee-Fay Low from Sydney University, presenting Rehabilitation for dementia: Evidence & Opportunities. It is one event, set in different time zones. See below for the times and register…
Last week, I presented at an online Webinar for brainXchange, with friend and colleague, Monica Cations. I’m not so great lately at promoting events or activities here, or even writing blogs, so thought I’d make up for it today! The session was called Rehabilitation as the future of dementia care. My presentation, Dementia as a Cognitive…
The life of an advocate can definitely be rewarding, but it can also be very challenging. Along my own roller coaster ride of living with dementia and public advocacy, I have met a lot of wonderful people, as well as felt a lot of frustration. I am though, very happy not to be walking alone…
For a change, I’m delighted to actually want to be labelled!!! Of course, many here will be surprised and wonder why. A dear friend and colleague posted a blog called ‘Labelled‘, and I’m extremely happy to be labelled one of the ‘criticals’… Dr Peter Gordon wrote: ‘There appears to be a new diagnostic category being…
In a blog published on 19 October 2018 on the site, strategy+business, There’s No Such Thing as Difficult People, written by Adam Kahane, there is a strong suggestion this is true. I took a screen shot from the site of Adam to use here, which has some information about who he is, and refers to…
Late last year, I received a few ‘top tips’ from the University of South Australia (sent to students for surviving exams), and I’ve modified them to apply them to life in general, and especially to living with dementia, or supporting someone with dementia. Feel free to add to them, suggest alternatives that may be better…
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