DAI Webinar: Dementia, Human Rights, COVID & Self Care
Please join me this coming week for this important and free DAI Webinar. https://www.eventbrite.com/e/dai-webinar-dementia-human-rights-selfcare-and-covid-19-tickets-107760911788
Patch Adams & #BanningBPSD
“If you treat a disease, you win, you lose; if you treat a person, you win, no matter what the outcome.” (Patch Adams) The movie, Patch Adams (which I love), is based on the true story of a heroic man, Hunter “Patch” Adams, determined to become a medical doctor because he enjoys helping people. He…
Shelfies, with Peter Goers
Last night, I had an interview with Peter Goers, on ABC Radio 8.91 for his raadio segment called Shelfies, on Evenings. This is the information I received from the producer about the program: The segment Shelfies, is centred on a list of pieces of literature which have influenced the guest over their lives – or books…
Ouch…
The quote below is the type of thing I read too often, written by a care partner about the person with dementia that they are supporting (love?). It’s one of literally millions of public posts similar to this one, that inspired my blog published yesterday. Ouch is probably an understatement. I’m sick of everything. Sick…
Ask yourself…
Hopefully this blog makes even a little bit of sense, although as I read and edit it, I’m a bit concerned. Anyway, my goal is for you to consider the first list, as if it were you. Ask yourself… When you’re having a bad day, are struggling to do something, or things are going wrong,…
Tardive Dyskinesia: Reaction to improper prescription of drugs, or neuropsychiatric symptoms of dementia?
Long title, long standing problem. And about which I have a question. “Tardive dyskinesia is a side effect of antipsychotic medications. These drugs are used to treat schizophrenia and other mental health disorders. TD causes stiff, jerky movements of your face and body that you can’t control. You might blink your eyes, stick out your tongue,…
Communicating with people with Aphasia
I recently put together a list of tips for communicating with people with aphasia (and dementia), which were published as part of a blog for Dementia Alliance International; I thought it would be useful posted here. It has become more important to me lately, as my language, speech and communication is changing, and I am…
ADA Singapore Symposium on Young Onset Dementia
I discovered this recording of a presentation I made in 2017 in Singapore online at 5am today… I was surprised as I don’t recall being asked if it was ok to record it, or upload it, but I’m not worried, as most things I have done in the #dementia space are out there anyway! Unbelievably,…
What hallucination reveals about our minds, by the late Oliver Sacks
It is heavy, in spite of how it looks
This quote is extremely relevant to me, and it is most definitely time for me to let go more, and to occasionally let others know I need help or support, instead of bearing the often heavy load of too many things for so many others. People don’t often check in with me, not because they…
Almost everyone wants to be “On the road again”!
Looking the other way
Before the COVID-19 pandemic, most of the world looked the other way when faced with the reality that even the most basic of human rights were being denied to people with dementia, including at the time of their diagnosis and for the rest of their life thereafter. What this pandemic has done, is to highlight…
Human rights in aged care
The warehousing of our most vulnerable… older people who need assisted living, and people with dementia has consistently failed them. In Australia there is a Royal Commission into this; however I’d suggest the Coronavirus has highlighted this much more than the #ACRC. The current Coronavirus pandemic has highlighted this, perhaps more than ever before. Sadly,…
Stress is contagious
This interesting article published in the Harvard Business Review, highlighted to me on Twitter by a friend Shibley Rahman @dr_shibley recently, titled Make Yourself Immune to Secondhand Stress, (2015), has reminded me that our moods (and responses) affect others. It is especially important when someone has dementia, either living with others at home, or in aged care or a…
I have Alzheimer’s, by the late Richard Taylor
In case you need any inspiration today, watch and listen to the late Dr Richard Taylor talk about dementia in 2009. He continues to be my inspiration, and a man I feel so blessed to have called a dear friend.
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