Many who have followed me here for a while will know I have adapted my lifestyle and focused on brain health as tools to help live more positively with dementia. Due to some personal stress and grief, I’ve been rather unfocussed! Hence, I really need to focus on brain health again! There is actually a…
Below is an past interview on CBN with Professor Dale Bredesen, who is an international expert in neurodegenerative diseases. I first published it in 2019 on my Living Beyond Dementia™ website, which is no longer active, so I have decided to transfer most of the blogs over to this site. The friend (SHA) who alerted…
An Australian organisation called Beyond Blue which is focused on supporting mental health said in a recent article it: “Recognises and understands the feelings of anxiety, distress and concern (BPSC-19) many people may be experiencing in relation to the coronavirus (COVID-19) and offers some advice on how to look after your wellbeing.” Beyond Blue is…
DAY/DATE(S): Wednesday, July 29, 2020 (USA/CA/UK/EU) Thursday, July 30, 2020 (AU/NZ/JP/SGP/TWN) Please note: this is one event, set in a number of different time zones. Register here… About the Webinar: People with all forms of dementia can experience changes to their walking and balance. There are many factors that can contribute to these issues that can be…
It feels important to (re) acknowledge the challenging nature of these times and I do sincerely hope you are all safe and well. I also want to thank those who have reached out to me at this time of deep grief, here, on social media and by phoning me or calling in. Words do not…
I am more than my ‘lived experience’ of dementia. Seriously. And I am much more than just a ‘Dementia Advocate’. True. Many years ago, I started advocating for people with dementia who are invited speakers to be listed on the program by more then their disease. Back then, not even the persons name was added.…
In 2016, I was interviewed by Jessica Kingsley Publishers JKP), soon after the release of my book, What the hell happened to my brain?: Living Beyond Dementia. This is my response to one of the questions: Q: What would be your best piece of advice for others who are living with dementia? A: My advice…
When my father in law was needing more support than we could get for him to keep him in his own home, we felt we had no choice but to suggest he move into a nursing home. His first response was: “I’m much too young for a nursing home.” He was well over 70 years…
This wonderful memoir, written by my friend and DAI colleague, reinforces why it’s not ok to tell people with dementia to only go home to die, or that life ends with a diagnosis of dementia. As an activist (advocate?) for more 12 years, this book also reminds me how tragic it is that most advocacy…
In March, when I started this blog I went out to the clothes-line to get in some washing (mostly my underwear), and the line was empty. I went inside and thanked my husband for bringing in the washing, but also felt a little confused, as he would not usually put my clothes away, and I…
Lost for words Wretched in my grief Thank you For your love and support As we face the loss of our super cool dude Boris…
‘Stop all the clocks, cut off the telephone’ Stop all the clocks, cut off the telephone, Prevent the dog from barking with a juicy bone, Silence the pianos and with muffled drum Bring out the coffin, let the mourners come. Let aeroplanes circle moaning overhead Scribbling on the sky the message He Is Dead, Put…
Ending confinement and segregation: barriers to realising human rights in the everyday lives of people living with dementia in residential aged care. This article was published on 25 Jun 2020, in the Australian Journal of Human Rights, by Linda Steele , Kate Swaffer , Ray Carr, Lyn Phillipson & Richard Fleming. Abstract: Human rights are increasingly being considered in Australian law reform…
Personally, I dislike being labelled by anything, including, or especially by a disease. Being labelled to my height, my skin colour, etc. is also offensive, and I simply prefer to be referred to by my name (the one I chose). Negative language and labels have the power to disempower us, as I spoke and…
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