Most years, I am more than frenetic throughout September, ensuring Dementia Alliance International (DAI) has blog content to post for every day of World Alzheimer’s Month also know as Dementia Awareness Month, and blog content to post here every day. For all sorts of reasons, including health, that has not been possible. I have certainly been wondering,…
Ok, so maybe I’ve got it wrong (again or still!), but surely focusing on what people without dementia think dementia might be like and spending vast amounts of money on virtual reality products to show more people without dementia what it is like for us seems a little off base to me. One or two…
This is a Seminar you can attend in person (limited spaces), or attend as a Webinar online, the first Dementia Alliance International event, being co-hosted with the Dementia Advocacy Awareness Team in Brisbane, and supported by BlueCare: Live life your way. Register here… You can also download the flyer below.
It was a day of interesting opportunities and challenges having a film crew in my house (sometime earlier this or last year – I can’t remember as I started writing this blog the day after). The denial bubble we prefer to live in disappeared that day, as we had to focus on what it is…
On one of my other websites Living Beyond Dementia™, I have posted part of an article from The Radical Respite Project. Living beyond dementia is still not overly acceptable publicly, as the media still wants the stories of ‘tragedy and suffering’, and when people with dementia refuse to go home and die via aged care, they…
I’m often asked for a various lengths of my bio and this is one version I gave recently: Kate Swaffer is a published academic and author, an international speaker, an activist, and a dementia and aged care consultant; she is a retired nurse, has a Masters of Science in Dementia (Distinction, 2014), and is a…
Kay Bransford, a long time virtual friend of mine wrote on her blog Dealing with dementia, in a post titled “Letting us in”; “I learned that once my mom was having cognitive issues, I couldn’t expect her to change. I had to change. We (my siblings and I) made life choices for her when she no…
Over the voting period of my life, I’ve been a political swinger, and the last couple of years, had actually become a political atheist, even joining the Facebook group of that name! In my home state, I have now decided to support Dignity Party SA, and will write occasionally about why I have decided to…
Over the years, it has come to my attention that others speak about me as one of the #DementiaLanguagePolice. There are many of us around the world, and we constantly have to put up with being labelled sufferers of dementia, even when most of the time, we are more often suffering because of this label,…
Yesterday I received an email from the University of Wollongong with the following media release about the ePAT App has now received regulatory clearance in Australia and for the European Economic Area (EAA). Below is the announcement that was placed on the ASX yesterday. As one of more than 50 million people living with dementia…
Well, I’ve realised my husband is right and I am probably an idiot as I book in too many meetings when we travel. Below is an updated itinerary as of today, as some meetings changed overnight, but who knows, if I can squeeze any more in, I’m sure I will find a way! We are…
Whilst this blog is not exactly a discussion on the new narrative of dementia, which is my current my #hottopic, this YouTube video sent to me by The Amazing Susan and makes it reasonably clear what I mean… and although it gave me a good laugh, it hits home exactly about what has been annoying…
Ok, so I know the word bugger Could be seen as crude But frankly, it is how I feel Yesterday I talked to my BUB Then I wondered where he was So I was frantically looking for him In our own home He was nowhere to be found So I called him on his mobile…
On Monday night this week, there was a television program in Australia (4 Corners) on the ABC which featured three couples with dementia. I had a reasonable idea it would be full of suffering, although it showed a lot of love and living as well as humanly possible as well, but from all accounts, it…
Someone just reposted this article on Facebook, and mostly because our amazing wonder-cat is Mr Boris is actually featured in the article and this photo, I am posting it here! In the article my Neuro-physiotherapist, Associate Professor (at the time of the article, a PhD Dr) James Mcloughlin said: “We’ve got pretty good evidence to show…
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