Hello Sunday! Earlier this morning someone posted the video below on Facebook, and it made me cry, but it also helped me find the strength to stop feeling annoyed about some of the challenges of dementia,and get back to working on my paddling! Watching it also made me even more aspirational in my dream that…
Those of you who follow me here will know I recently had an issue with the cover of my book in the German translation being published by hogrefe, What the hell happened to my brain?: Living beyond dementia. I am more than delighted to say again it has been resolved, but I’d like to comment further,…
Many who have been reading my blogs for a few years, or are connected on social media with me, will know I have a friend in the UK who was a clinical neurologist, and who is now also an eminent academic and author. Like me, he can be a tad short tempered, and does not…
Following yesterdays SA update, here is a brief national update from ProBono Australia who reported on the NDIS late last week, written by Rachel McFadden (29 July 2017); NDIS Having a Life Changing Impact Despite First Year ‘Teething Problems’ On the eve of the first anniversary of the Australia-wide rollout of the National Disability Insurance Scheme…
This week, I thought I’d begin with news about the NDIS in South Australia, partly because it was celebrated by many of us with the Dignity Party SA on the weekend, with a giant NDIS celebration cake (gluten free, although definitely not sugar free), as pictured here! The media release was sent out Friday about it,…
You may be wondering what I mean by that quote? Well, to start with I can most certainly guarantee no-one with dementia ‘lives well’ or even ‘beyond dementia’ all of the time. For that matter, with or without dementia, not everyone lives well all of the time ! But people with dementia appearing to live…
On May 29 this year, the World Health Organisation’s Global Action Plan on the Public Health Response to Dementia 2017-2025 was unanimously adopted. The following is the announcement made in Geneva: Delegates at the World Health Assembly have reached new agreements on dementia; immunization; refugee and migrant health; substandard and falsified medical products, and the world…
My second dementia book, Diagnosed with Alzheimer’s or another dementia, co authored with my friend and colleague Associate Professor Lee-Fay Low was released recently as an e-book through the Apple iBooks Store which you can find here… The following is the Foreword written by Professor Henry Brodarty: “Dementia is never one person’s illness. Its ripples spread wide, enveloping…
Ok, I think I might be getting back into the swing of more regular blogging. There has certainly been enough ‘material’ around to give me ideas, and in going through my sent emails in a private gmail account, I found a large number of emails I’ve sent to myself on another email for blog topics!…
After watching the movie Hidden Figures on a flight few weeks ago, I took a photo of one of the scenes, as per the image here of a power point slide which is being used in almost all of my presentations now, to highlight the fact we are segregating people with dementia by locking them…
The last few months have been a very difficult time for me; physically, emotionally and also in terms of managing the disabilities of dementia, and due to this it has been very necessary for me to get support to proactively manage the stress. Since February, I have also consciously kept myself much busier than usual to avoid thinking…
Rebel Wilson, a prominent Australian woman who was publicly bullied and shamed with lies about her character by the media (and ‘close friends’) has won her court battle. If only I had the money and energy to take on the media, but alas, not only do I not have the money, doing so would probably…
A few years ago I wrote the following blog about what it feel like it feels like to have dementia. I have followed it today with what I have found to be some of the gifts of dementia, also written about previously in a number of posts, but also inspired by another online friend. Thankfully,…
Chris Roberts posted a blog by George Rook, and both of these men live as well as is humanly possible, with a diagnosis of dementia. Thanks Chris for reminding me via the post on your site, to post it here. George Rook, thank you for writing “I’ve changed my mind”. It is a wonderful blog, and saves…
It’s definitely been a while since I blogged here, but today, my blog is for all dog lovers! I follow a number of other blogs, and today I am highlighting one written [sic] by a dog! He is a working dog, and works for a prominent Australian, Graeme Innes AM. Graeme Innes “is an Australian company…
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