Ok, I think I might be getting back into the swing of more regular blogging. There has certainly been enough ‘material’ around to give me ideas, and in going through my sent emails in a private gmail account, I found a large number of emails I’ve sent to myself on another email for blog topics!…
After watching the movie Hidden Figures on a flight few weeks ago, I took a photo of one of the scenes, as per the image here of a power point slide which is being used in almost all of my presentations now, to highlight the fact we are segregating people with dementia by locking them…
The last few months have been a very difficult time for me; physically, emotionally and also in terms of managing the disabilities of dementia, and due to this it has been very necessary for me to get support to proactively manage the stress. Since February, I have also consciously kept myself much busier than usual to avoid thinking…
Rebel Wilson, a prominent Australian woman who was publicly bullied and shamed with lies about her character by the media (and ‘close friends’) has won her court battle. If only I had the money and energy to take on the media, but alas, not only do I not have the money, doing so would probably…
A few years ago I wrote the following blog about what it feel like it feels like to have dementia. I have followed it today with what I have found to be some of the gifts of dementia, also written about previously in a number of posts, but also inspired by another online friend. Thankfully,…
Chris Roberts posted a blog by George Rook, and both of these men live as well as is humanly possible, with a diagnosis of dementia. Thanks Chris for reminding me via the post on your site, to post it here. George Rook, thank you for writing “I’ve changed my mind”. It is a wonderful blog, and saves…
Professor Dale Bredesen has been doing research into reversal of cognitive decline, which I have been following now for more than three years. Frankly, as a person diagnosed with dementia, and who has self prescribed a pathway very similar to this protocol, I am incredibly excited about it, and intend to become even more committed…
The use of ANY restraints in dementia care, including physical or chemical, is starting to be seen by now by many including health care professionals and not just a few of us living with dementia or supporting someone with dementia, as a major breach of human rights. Locking people in secure units, is for other…
As those of you know have been following my blog for a long time, it used to be a daily blog, and last week, at an author event I spoke at in small country town called Two Wells where Annabel Crabb comes from, I met the wonderful Carolyn Cordon, a fellow poet and someone I have known…
Thanks to my DAI members and family for supporting this webinar. If you haven’t seen it, please watch, listen, and learn.
Last year, I was asked to answer some questions for a website featuring Change agent stories, which has now changed its focus. They invited people to write stories whom they considered to be ‘Radicals or Change Agents’. The questions took me a long time to answer, and even now, I am not sure if I have answered them well,…
I am no longer an advocate for myself or for others diagnosed with dementia. I am no longer an activist for myself or for others diagnosed with dementia. I am slowly getting stronger again… and I am now a warrior.
The day after the AOTY awards were announced in Canberra last week, one reporter from the ACT phoned me and asked me what it felt like to be one of the losers. I was one of 32 state winners, and frankly, with or without an award, still feel like a winner, and have never felt…
Living beyond dementia Is tough And sometimes even fun But many days are torture Days spent finding files Many more losing them Only functioning at all Because of the support of our BUB’s More than occasionally We want to give up paddling… And, it seems, one or two might prefer I just stayed home and died… Finding…
Thanks to Ita Buttrose, AO, OBE, an Australian journalist, businesswoman, television personality and author, for inviting me to be interviewed on The Studio. Ita was the Australian Of The Year in 2013., and she is a true media Icon, an inspiration for all women of all ages, and a woman who I feel lucky enough…
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