On dementia, disAbility and writing my book

Jessica Kingsley Publishers in the UK sent me a few questions to answer about what is was like when first diagnosed with dementia, how dementia has impacted my life and family, and on living beyond dementia, continuing to study and much more… you can hear my response here. My book “What the hell happened to…

My office has younger onset dementia

There was a time when my house was immaculate, the pillowslips AND the sheets were ironed, and in fact, ironing as a topic here has been a bit hit in the past! Everything in the cupboards were aligned, all clothing in the wardrobe and drawers were ironed perfectly and in neat piles, or hanging with matching coat…

The pain and beauty of grief

I wrote the following about grief on Facebook recently, and feel that grief can be the biggest, sometimes the darkest times of our lives, and yet, very often the most beautiful part as well. “Grief is that devastatingly painful but incredible and beautiful expression of your love … It’s ok and it’s yours and don’t let anyone…

The sweetness of life

Life Is for living For dreaming And for learning Life Is for crying For healing And for moving on Life Is for remembering Sweet times And for family and friends Life With fading memories Is a roller coaster of loss and grief Life With dementia Can still be fun

I sat and cried for a while…

I sat and cried for a while… I cried for those people who I miss and still love who have left this world I cried for the babies I lost in utero I cried for my friends who have lost people they loved I cried for having dementia I cried for all the other people with dementia…

Listening and speaking

We need to learn to speak in such a way that others will want to listen, and listen in such a way that others will want to talk to you. Of course, this means writing or communicating in any form, in such a way that others will want to listen to you; it does not only apply…